[phpBB Debug] PHP Warning: in file [ROOT]/phpbb/session.php on line 585: sizeof(): Parameter must be an array or an object that implements Countable
[phpBB Debug] PHP Warning: in file [ROOT]/phpbb/session.php on line 641: sizeof(): Parameter must be an array or an object that implements Countable
Carers UK Forum • qestion re; epilepsy - Page 33
Page 33 of 44

Re: qestion re; epilepsy

Posted: Thu Oct 17, 2013 8:44 am
by PAUL72
Thank-you Sturdygirl, they might be filming us a bit more also, had a text message yesterday funny enough to say Channel Five had seen the edited version (series two) of Brain Hospital and they were very "moved" by Lisa's case, so I hope after all this they'll show it in Jan/Feb 2014 and give others the chance to learn how we cope and about new treatments.
Paul

Re: qestion re; epilepsy

Posted: Fri Nov 08, 2013 6:53 am
by sturdygirl
Hi Paul,
How's Lisa getting on?
x

Re: qestion re; epilepsy

Posted: Fri Nov 08, 2013 8:12 am
by PAUL72
Hi,
well she's doing not bad at all to be honest at the moment. Lisa came out of hospital last Friday having spent 2 weeks having extended EEG's and psychology testing, the neurosurgeon was very surprised how Lisa's memory improved at various levels of stimulation, her best achievement was number recall and the speed at which she did this.
We're back in around 4 weeks time in day clinic.. once they've looked at all the data captured then they'll tweak the stimulation to suit, but this is just the starting point and adjustments will continue over the next 18 months.
Seizure wise it might be that she's just going through a good patch but this last 2 weeks have been good...a few completely clear days (unheard of for Lisa) other days she's had 2-3 seizures maybe.....most of these were very quick, but no clusters (continuous seizures) she's needed no Diazepam or Midazalam (rescue meds) during the last 3 weeks.
In herself she seems much brighter and clearer, and her mood is very happy.
A long way to go yet ...I'll keep you posted.

Re: qestion re; epilepsy

Posted: Fri Nov 08, 2013 9:30 am
by crocus
That sounds very positive Paul Image Hope the progress continues, or is, at least, maintained

Re: qestion re; epilepsy

Posted: Fri Nov 08, 2013 11:26 am
by ellcee
That sounds hopeful, Paul. Hope things improve further.

Re: qestion re; epilepsy

Posted: Fri Nov 08, 2013 10:24 pm
by PAUL72
thank-you both, I will certainly update you over the coming months.

Re: qestion re; epilepsy

Posted: Sun Nov 10, 2013 5:40 am
by sturdygirl
Hi Paul,
I am so pleased to hear things are better at the moment Image
It must make such a difference to you all, especially Lisa and her general feelings. (My Hubs is no where near as bad and it gets him so very down)
I hope Lisa continues to improve, or at least keeps on a steady path with far fewer seizures.
xxx

Re: qestion re; epilepsy

Posted: Sun Nov 10, 2013 8:47 pm
by PAUL72
Thanks Sturdy...we'll see what the next few weeks will bring.

Re: qestion re; epilepsy

Posted: Tue Nov 26, 2013 7:44 am
by PAUL72
Hi, just a quick update for you. We had our preview of Brain Hospital series 2 on Sunday night, and we're fairly happy with it. Lisa's story will be in episode two along with 2 others, and the series is due to start at the end of January.
There is 4 programs altogether. You will see Lisa having one of her small seizures after we've come in from the local park, our daughter reads a bit to the camera on what happens during a seizure. The surgery is shown and the reality as it happened.
I'll remind everyone nearer the time.
Paul

Re: qestion re; epilepsy

Posted: Tue Nov 26, 2013 3:51 pm
by crocus
I really want to watch this paul, but will certainly need a reminder Image
It must be very hard for you and Lisa.