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Carers UK Forum •Personal Healthcare Budgets to Empower People With MS
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Personal Healthcare Budgets to Empower People With MS

Posted: Mon Jun 30, 2008 11:19 pm
by rosemary

On Monday 30 June, the final report of Lord Darzi's review of the NHS will be published and will talk of an NHS that "empowers patients" through care that is "high quality and personal".

Lord Darzi will announce the piloting of personalised budgets in healthcare, following successes in social care.

The MS Society is a key stakeholder in the review process and MS has been named as a condition that would benefit from personal healthcare budgets.

Simon Gillespie, Chief Executive of the MS Society, said: "The emphasis on personal budgets and patient empowerment means this report represents a great opportunity to give people with multiple sclerosis (MS) access to the care they need when they need it and in the most appropriate way.

"MS is a fluctuating and complex condition and people's needs change from week to week. Putting people at the heart of planning and delivery of their own healthcare should lead to a better quality of life overall and encourage greater independence, as we have seen when personalised social care has worked.

"The extension of personal budgets must not, however, be seen as an end in itself. This is a necessary step in the process of giving people with disabilities maximum control over their lives, and over the care and support they need."

The Government has also laid out plans to speed up the National Institute of Clinical Excellence (NICE) drug delivery process.

The MS Society has twice challenged NICE over its assessment of MS drugs, first over the beta interferons and glatiramer acetate and last year over natalizumab. In the first case, the Department of Health set up a risk sharing scheme to make the drugs available outside of the NICE framework. In the second case, NICE revised its opinion on appeal.

Chief executive Simon Gillespie said: "This is good news for people with conditions like MS, who are keen to see effective new treatments made available as quickly as possible.

"The MS Society has had several bruising encounters with NICE over MS drugs and while it's right that the NHS keeps a close eye on costs, two years is far too long to wait if you have an incurable condition and can see yourself getting worse.

"There are still issues that NICE needs to address - the lack of transparency in their methods, the significant number of drugs that haven't been assessed - but this is definitely a step in the right direction."

rosemarry in the last ten

Posted: Tue Aug 12, 2008 4:42 pm
by beth
rosemarry in the last ten years my husband had m.s not once was he or i told you could get drugs for it, in fact we were told their were no drugs avalible for people with m.s not only by his doctor but also at the hospital can you tell me what drugs you can get and what do they do, spasms, and memory loss seems the number one, and i do wounder at times if they misdinosed him as dimenta when at times i think it is a side effect of the m.s,

Beth, you may be right

Posted: Wed Aug 13, 2008 6:10 am
by charles47
Beth, you may be right about the dementia - it can be that people with MS sometimes develop dementia through the effects of the MS. Certainly MS can bring about changes in personality.

I've done a quick trawl on the MS Society website and there is a page that may answer at least some of your questions about treatment:

http://www.mssociety.org.uk/about_ms/tr ... index.html

Hope this helps.

Re: Personal Healthcare Budgets to Empower People With MS

Posted: Tue Nov 06, 2012 1:17 am
by joanne75
Your doctor and the Hospital were wrong to tell you there are no drugs for MS but other things like St Johns Wort can be helpful too and other herbal remedies and some people can get a cannabis spray for pain but it has to be prescribed by the doctor.