TO BE DISTRIBUTED WIDELY!


Dear Everyone,

Please note the following M.E. People’s Day Events 2008 taking place in London on International M.E./CFS Day, 12th May 2008. And the annual M.E. Event held in the Houses of Parliament, on Thursday 15th May.

They are national M.E. events therefore, anyone affected by M.E. including carers, friends and families or anyone with an interest and/or concern with M.E. can attend.

All national M.E. charities representatives, groups, organisations and individuals are warmly welcome to attend and encouraged and participate - especially, to advertise both of these M.E. Events in their email mailouts, newsletters and websites:

1. MONDAY 12th MAY:

11:00 AM - 11.30 AM Informal Gathering opposite Downing Street, Whitehall, London SW1
12.00 NOON Presentations to 10 Downing Street by a small presentations group and photo-call
12.30 PM Presentations to Department of Health, Richmond House, Whitehall, London SW1
1:00 PM - 2:30 PM M.E. Picnic & Poetry, St James Park (10 minutes walk from Whitehall) London SW12


THURSDAY 15th MAY:

11:30 - 1:15 PM M.E. Picnic & Poetry, the Victoria Tower Gardens (just further along from Houses of Parliament Black Rod Entrance), overlooking the Thames
1:15 PM - 1:30 PM Join Lobby Queue at St. Stephen’s Gate, outside Houses of Parliament
1:45 PM Prepare to enter Committee Room 6
2:00 PM - 4:00 PM Open Forum Meeting to discuss the current affairs in the M.E. World

The Open Forum is an opportunity for members of the M.E. Community, its charities, groups and organisations to discuss the current state of affairs in the M.E. World and where we are in relation to: NICE, Occupational Health Guidelines, DWP, the Mental Health Act and Mental Capacity Bill and its implications with M.E., APPG On M.E., the M.E. Observatory, recent Government initiatives, representation of national M.E. Charities, NHS-Plus, Charity Commission, Carer Issues, Research and a number of other related M.E. topics.

There will be an agenda for the day and it is envisaged, that people who have a specialist interest on an above given topic, will come forward with a presentation of documented references to naturally state their case.

If you would like to present a case on one of the above topics please make contact in the first instance
12MayM.E.PeoplesDay_Events@live.co.uk

We very much hope the 12th May M.E. People’s Events founder and patron, Trev Wainwright will be able to join us at one or both of the events, subject to health and commitments, of course.

The usual “creature-comfortsâ€Â