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Limb Girdle Muscular Dystrophy

Posted: Fri Jun 27, 2008 11:24 am
by tony
Hi my wife of over 30 years suffers from MD which does not seem to get much of a press I suspect because the more fast acting Duchenne version which I believe terminaly affects young boys is so distressing.

The physical impact is increasing loss of use of the limbs she has been in a wheelchair 24/7 for the last 25 years but is getting to the point where she is to distressed to go out for a meal as she finds the tables in most restaurants to low to eat from as the hieght she can raise her hand is reduceing. I do not have a problem feeding her in such situations but clearly it is embarassing for her.

Does anyone else have this illness can anyone point me to information on how it will progress?

Many Thanks Tony Image

Hi tony Try the Muscular Dystrophy

Posted: Fri Jun 27, 2008 11:36 am
by Christine Carers UK
Hi tony

Try the Muscular Dystrophy Campaign. They have a whole section on Limb Girdle Muscular Dystrophy, including information on how it progresses.

Muscular Dystrophy Campaign

Hope you find something of use.

Chris

Hi Tony, I wasn't around on

Posted: Sat Jun 28, 2008 1:02 pm
by cotula
Hi Tony,

I wasn't around on Friday, or I would have posted exactly the same info. Christine has given. I get the MD Campaign magazine and other information regularly, it is free to sign up, including support groups for specific types of MD.

MD is a huge group of varying conditions - I care for my father, who has FSH dystrophy.