I have been caring full time for my husband for three and a half years. He is 54 years old and was diagnosed with Myotonic Muscular Dystrophy when he was 28, two years after we got married, gradually losing muscle strength and mobility over the years while developing the cognitive aspects of this condition. I read recently that it affects 1 in 8000 people. I felt isolated enough without knowing that. Does anyone else here care for a loved one with Myotonic Muscular Dystrophy?
Isolation and caring can go hand in hand.
http://www.mda.org/disease/myotonic-mus ... y/overview I'm not sure if this link will help in any way.