Hi, I know exactly what you mean, my husband is on middle rate care as he needs care during the night.
I know from my benefits advice surgeries, he does qualify for high rate care too and probably low mobility but we don't claim it either.
OH is very precious about the things he CAN
do and I don't want to take that away from him.
He accepts there is no way he could cope with all those night seizures alone and he definately needs help during the night so he has no problem with claiming a night care middle rate although he does not want to claim day care.
All this press reporting of I.B. and disability claimants being portrayed as frauds and scroungers has made him very wary of claiming day care.
He feels, while he is only claiming night care, it's unlikely anyone would ever despute his entitlement as it's so clear cut ! but if people saw him working around the garden etc. on a good day or pottering about with our car, this could be open to an investigation by DWP that he is not in a fit state to cope with.
He can't bear the thought of trying to justify his disabilities, it's hard enough living with it!
I honestly feel, yes he would qualify and the extra money would ease the expenses of coping with the disability but it would come at a cost neither of us want to pay!
We'll hold off as long as we can and if things deteriorate again, we'd need to re-visit this decision.
I bet there are lot's of other people who are in a similar position but the press wouldn't be interested in that would they? no they only want to paint a nasty picture don't they!