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Anybody out there

Posted: Tue Jun 03, 2008 11:36 am
by Guest
I have Myotonic Dysrophy and was wondering if there is anybody else out there with this condition or caring for somebody with this condition. I have put a post on about the condition on this site but don't know if anybody has the same. If there is anybody who deals with the condition please reply to me as I sometimes feel isolated being the only person I know with this condition (apart from my father). Take Care Alisin Image

Hi Alison, I have no idea

Posted: Tue Jun 03, 2008 12:48 pm
by rosemary
Hi Alison,

I have no idea if any of our members are caring for someone with same illness as yours but in meantime I have found the following link on the Contact a family website.

http://www.mdsguk.org/

http://www.mdsguk.org/services1.htm this is about the services they offer

I hope it will be of some use to you.

Rosemary
x x x

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