Hi Lesley,
My Gran is currently battling ALS- it really is like living in a waking nightmare, you're right.
The main bit of advice I can give you is to get equipment before it's needed- this disease can literally progress overnight. A lot of the time, it can be the case that equipment arrives and it's no longer useful because the disease has progressed further.
With regard to progression, every person with MND is different and the disease presents itself in different ways and at different speeds. For example, my Gran started with a case of Drop Foot in June/July 2018. She only started displaying other symptoms (tiredness, aching muscles, dysphagia) in February of this year. We finally got a diagnosis in March and, since then, her decline has been rapid. She's now completely bedbound, speech is almost completely incoherent, swallowing results in choking episodes and her left arm has started to atrophy.
Absolutely get in touch with the MND Association- I'm not sure what help you'll get in Spain, but here it works by region so some areas of the country have an MND Nurse and palliative team, other places have a palliative care team headed by an occupational therapist (we have the latter). They are your most crucial team- they will have seen everything before and they will know what's coming even before you do- definitely obtain as much knowledge from them as you can.
May I ask which area(s) your husband has been affected (i.e. limb onset or bulbar onset)?
I also want to extend my sincere sympathies for what is to come- you will need to be the strongest you've ever been in your life (please do feel free to PM me if you have any questions or if there's anything I can help with)