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Getting a Diagnosis Overturned - Carers UK Forum

Getting a Diagnosis Overturned

For issues specific to caring for someone with mental ill health.
I'm not sure if I should have put this here or in the Carer's Health section so feel free to move if necessary.

To give a bit of background, I had a mental health breakdown about ten years ago and was diagnosed with Cyclothymic Personality Disorder by NHS doctors and Bi-Polar 2 by a private psychiatrist.

I do not mean to cause any offence to anyone here who suffers from either of these conditions but I feel I was misdiagnosed and would like to get the diagnoses overturned if possible. I went to see my doctor this morning but he says it isn't possible to do this. Essentially I feel I've been labelled for life with something that isn't accurate.

Is there anything at all I can do about this? It just seems odd to me that someone can give a diagnosis that doesn't seem to be accurate and it's just left there regardless.

Many thanks in advance.
Hi Mumwhocares

I think in this situation you should contact the doctor that diagnosed you and see if he will re-evaluate you?
Hope you get the result you want :)

Tilly
I would have thought that you could ask your GP to refer you for a second opinion, which you are entitled to. Sometimes, it seems to me, that it's easier for a GP to say 'no' than to take the time to seriously re-visit a problem; you may have to politely insist !
Hello Mumwhocares
I would speak to the Psychiatrist (if possible) who diagnosed your condition and ask what information he/she used to make your diagnosis. Explain your concerns and if you're still not satisfied ask for a second opinion.
You could contact the department where you last saw the Psychiatrist and request an appointment. If not you may have to re visit your Dr and be firm about what it is you want, explaining that as a patient with a mental health issue you have rights and will contact a solicitor who specialises in mental health to deal with the matter if he can't/won't.
Kind regards
Hi everyone, thanks for the info, thought I would update.

I've had some information from Mind; apparently to get the diagnosis overturned I need to prove it's wrong and in order to do that I need to get another doc to say so. Even if I get that, the Trust can still refuse to delete the old record and then it would have to go to court - a lot of hassle!

Alternatively, I can do what I've already done, which is write down my concerns and have them added to my notes and explain it to the doctor so he's aware of the situation (which is basically what I did when I went to see him last week). So I think I will leave it there for now; weighing up the time, effort, work and expense it doesn't seem worth having a huge fight over it at this point so I think I will let sleeping dogs lie, as it were.

Thanks for all the help and advice, much appreciated :)
Hi, thought I would update again!

The doc offered to write a letter confirming that I've had no problems in the time that he's known me (about six years with this GP).

I went to collect it and he's put that bit, and has then written:

"She has a past history of significant progressive illness but this appears to be no longer a problem".

I might be being overly optomistic but I've read that as "she hasn't got what they said she's got but I'm not willing to actually say that so I'm being a bit vague but pushing whoever reads it in the right direction" - which I was quite happy with! Will certainly do for now :)
Interesting. My partner has been mentally ill for 10 years, but a recent 90 minute chat with a psychiatrist from his new team (we moved around a year ago to a neighbouring county) lead to a new 'label' aka diagnosis. An assessment was deemed necessary, strange how they can just change it like that, but if you yourself, the person who knows you best, wants it questioning, it's far harder. My partner is going for primary care help but has been told at the end of that treatment he may return to secondary care and ask for another assessment.

The update you've given seems to be good news, let's hope you can get to where you need to be with it :)
Kim wrote:Interesting. My partner has been mentally ill for 10 years, but a recent 90 minute chat with a psychiatrist from his new team (we moved around a year ago to a neighbouring county) lead to a new 'label' aka diagnosis. An assessment was deemed necessary, strange how they can just change it like that, but if you yourself, the person who knows you best, wants it questioning, it's far harder. My partner is going for primary care help but has been told at the end of that treatment he may return to secondary care and ask for another assessment.

The update you've given seems to be good news, let's hope you can get to where you need to be with it :)
Hi Kim, thank you! I know what you mean; it's one rule for doctors and one for everybody else. Funnily enough when I was struggling years ago and desperately wanted a diagnosis (just to be able to think, okay, that's what's wrong) they wouldn't give me one. Then they gave three conflicting ones simultaneously which is obviously daft and then each doctor involved insisted they were right and refused to change their answer. I got all my old medical records through recently and they're mind boggling; no-one reading them would be able to work out what on earth was going on! I think it's difficult with things like mental health because it is just someone's opinion as to which criteria you fit and they do change the criteria anyway. I hope whatever happens next with your partner's situation that they get something useful from it (let's face it, we don't mind what you call it as long as there's some help available!).