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advice on hospital rules and benefits available to me

Posted: Thu Feb 15, 2018 8:23 am
by john_18021
Hope this is the right place to post :?
Hi
I am hoping to get some advice on any help available to me and my wife and hopefully find out what our rights are regarding hospital rules and benefits. Any information or tips where I can get information would appreciated.
I am my wife’s carer and my wife suffers from Anthropophobia ( fear of people),Depression, Anxiety and panic attacks and has no trust and actual fear of any authority people including Dr’s.
She now has developed Neuroendocrine tumours (NETs) and needs a stomach operation involving the removal of part of her stomach and possibly chemotherapy.
I sufferer from Crohne’s disease and Spondyloarthritis and stress makes my condition worse and I am on immune suppressants, so need to be careful who I am around with.
We live 120 miles round trip from the hospital in a remote part of Scotland, got no relatives here or friends and got one Labrador dog, which always has gone everywhere with us.
We are in receipt of benefit and get hospital fares paid for when the patient or patient with the carer travels there.
Hospital accommodation would be available but they do not take dogs.
So what happens when my wife goes to hospital, would I be able to claim for travel daily as a carer and not a patient, could they be able to give us room so I can stay with her on the ward because of her Anthropophobia to keep her calm and put the dog in a kennel (possible claim for the kennel) or stay in a bed and breakfast near the hospital and claim for that.
Also will she be exempt from the visiting rules, eg can I be there all day as I am her carer and she needs me to keep her calm?
Sorry for this long post but this really getting to me, as there is strong possibility my wife will not have the operation if I cannot be with her after the operation which could be fatal. We cannot afford all the daily travel or b and b and the dog cannot be left on its own
Thank in advance for any info.

Re: advice on hospital rules and benefits available to me

Posted: Thu Feb 15, 2018 10:34 am
by bowlingbun
I suggest that you contact the PALS department of the hospital concerned. (Patient Liason). I live on the south coast, so know absolutely nothing about rules in your part of the world, but you cannot be the first person to be in this situation and I'm sure the hospital will have some help and advice about travelling and/or accommodation. For details of benefits, email our CUK helpline. My mum had hyperostosis, in many ways similar to your own problem. Please be careful to protect your own health as much as possible.