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Update

Posted: Tue Feb 17, 2009 1:57 pm
by Danny
Well here i am again, hello folks. Mum been in hospital about 8 or 9 weeks now actually reallly happy and the nurses are wonderful. Mum is totally dependent on others for her feeding, drinking , continence and general care, we have tried looking at nursing homes but the ones we can afford are terrible so dad has decided we will try an nurse her at home. We have NHS support when they can find careres to come and care as well as an air bed and table but the actual nursing will be down to my dad who is 72 and me who works full time !. Apparently the nurses will visit four times a day but the night scares me top death as it will be dad and I on our own. Am thinking of dropping hours at work but am worried about money or lack of it if i do. What happens if dad gets sick also i can see me losing my job as i will have to care for them both and it terrifies me. Sorry to winge but i am really worried what the future holds. Any advice gratefully recieved.

Hi Danny, Give Carers Line a

Posted: Tue Feb 17, 2009 3:32 pm
by rosemary
Hi Danny,

Give Carers Line a ring.They can discuss things with you better.

CarersLine is staffed by experts and has years of experience of dealing with the problems carers face. We provide free and confidential information and advice on:

benefits and tax credits
carers employment rights
carers assessments
the services available for carers, and how to complain effectively and challenge decisions.
Our freephone number is 0808 808 7777 and we are open on Wednesday and Thursday 10am -12pm and 2pm - 4pm.

Take a look atthis too

Use the menu on left hand site to look up further information.

Rosemary

Hi Danny Really nice to hear

Posted: Tue Feb 17, 2009 4:07 pm
by Bluebird
Hi Danny

Really nice to hear from you, I've been wondering how you are getting on.

Glad to hear that your Mum is having good care in hospital. I'm pleased that you have NHS support for care at home and getting nurses to come in and help during the day, but could they not provide someone for the night shift aswell for you? You might get sleep, but you may also be up all night changing bedding etc as I am. I don't know how PA's personally work, but maybe this is what you need. Let them know your concerns, don't be afraid and see if you can get more help.
I was told at the hospital on Sunday, that if someone needs nursing care (as opposed to residential) then the government should pay for it? I have previously been told by Social Services that I would have to pay for Mums care if I put her in a home, but if you fight for it, its free apparently. Maybe someone else will give us both help on this, I am speaking to Mums Doctor on Thursday about it.

Please try not to worry to much about the future as there really is no point worryin about what you don't know. I try to take each day as it comes otherwise I would worry myself to death. Try to keep working to start with and you will have a better idea in a few months about how you are all coping.
I know it all sounds scary now, but all you can do is give it your best shot and see what happens.
Take care Danny and talk to us all on here, don't be alone.
Bluebird xx