Self funder in care home with dwindling savings

For issues specific to caring for someone with dementia.
I would appreciate any advice on the following:

Mum 93, diagnosed with Alzhimers 10 years ago. Lived with me for 8 years prior going into a care home a year ago. Her funds which I anticipated would last about 18 months have gone quicker than I had hoped. I was near breaking point when Mum went into the care home as she was getting me up 8 times a night refused to have carers or go to respite. I was and still am caring for my disabled daughter who is 27, wheelchair reliant with communication difficulties and requires all personal care.

Fortunately Mum went into home willingly and altho asked how long she would be there seems to accept it is now permanent.

I have approached local authority to have care and financial assessment done but they are really dragging their heels. The home have reassured me that this is usual but I can barely sleep thinking about it and worried that they may even say she is not eligible for assistance if she does not meet their criteria. She has the Alzheimers diagnosis but seems so much better in the home- she still gets up several times in the night for the toilet but they can deal with it there. It was killing me when I then had to care for my daughter during the day with no sleep at night.
I can not go back to caring for them both and I am hoping they will take this into account when doing the assessment. I don't want Mum moved and am happy to pay top up fees as long as they fund too.
I am just worried if they decide that they assess Mum as being able to cope in a flat with 4 visits a day- it would destroy both of us.
Hi Diane,
Just a quick answer as I need to go to bed, others will be along with more advice t'row.
It needs to be firmly stated that your Mum doesn't have funds, without the care home she would be homeless, she has no one able to care for her, plus she has a progressive disease. She has a very strong case. Do NOT offer to pay a top up. Does her care home have fully funded residents as well as self finders?

Melly1
Diane_1605123 wrote:
Wed Mar 06, 2019 7:32 pm

I can not go back to caring for them both
You are under no obligation to care for anyone - just tell them (if asked) that you can't and won't do it.
Hi Diane,

As soon as mum's savings get below about £23,000 then Social Services have to contribute towards her care. At that point you should stop paying until they have done a formal financial assessment, looking at all her income and savings.

If you are already below that point, stop paying completely, until they have done this. Write to the Director of Social Serrvices and make a formal complaint about his department's failure to "act in a timely fashion" and ask for URGENT action to be taken.

Can I also check that she has been receiving Attendance Allowance whilst self funding?

There is no need to feel guilty about mum being in a home because you could not care for her any longer. Many of us here, including me, have had to accept that residential care was the only option left.

My son is now 40, he was brain damaged at birth, can't read and write, but is fit and well. Are you getting enough support for your daughter? Have you made any plans for her future when you cannot care for her any more?
David,

I agree with the others - DO NOT agree to pay the top up. Now is the time to enlist the help of the Care Home Manager - after all, they have a vested interest as they want their money! They will also have come across this many times before. The local authority will have a maximum that they are prepared to pay. The Care Home may well know how much this is. Repeat in the mirror several times a day "Mum's needs are more than I can meet; she needs residential care". You cannot be forced to care. A threat to involve the local paper and your MP may also help in your discussions with the local authority.

Incidentally, I did this battle myself and it took over six months. Mum is safe and cared for where she is which is the good news. The money will sort itself out in time. In my own case mum died before we finalised the finances. It may also be worth contacting Carers UK Adviceline for confidential advice re your particular case.

Good luck, I know how stressful this can be,
Anne
Social Services may be less than honest about fees, so do not sign ANYTHING at all about fees.
I once reclaimed £8,000 on behalf of my mum as I'd been told that I'd signed something when I knew I hadn't.
I have studied Business Law, Contract Law etc. and can be a formidable advocate for my family when necessary!

The rules state that Social Services can ONLY consider mum's financial situation when calculating financial contribution towards care home fees.
It is UNLAWFUL to ask relatives to pay top ups.
I would suggest using email rather than phone, wherever possible, then there can be no dispute about what was said.

If you google "Charging for Residential Care" there is lots more information.
Charging for residential care ?

AGE UK ... Factsheet 10 ... in .pdf format ... THE BIBLE :

https://www.ageuk.org.uk/globalassets/a ... re_fcs.pdf
Many thanks to you all for taking the time to respond with your helpful advice.

I know I have no legal responsibility to provide care and that ultimately if I refuse to do it they have to find a solution but it is very hard, if not impossible to suddenly stand back completely impassive and disinterested in what will be the final years of someone who was a good, loving, fun Mum. I know I can't do it but that doesn't mean I am willing to compromise on Mum's happiness, comfort and well being.
Also I don't understand the situation with top ups. The home we chose was because we heard good things about it, they were very welcoming and open to several visits, I hung around the car park accosting relatives to ask what they thought of the place and heard nothing but good. This was all prior to her going in. It also happened to be the nearest to me and at £1000 pw was the average price for our area in London. The local authority ceiling for assistance is £650pw so the top up would be impossible to meet although the care home manager has intimated that this could be negotiated as its in no one's interest for Mum to move and this is absolutely true.
I really don't want Mum to be moved. She has only been out of the home twice in a year. The upheaval would be too much for her. I know all your advice comes from your experiences and it means so much to be able to share these worries with people who have walked in the same shoes. Thank you
AGE UK Factsheet , Diane ?

I will assume any notion of CHC / NHS Continuing Healthcare / NHS Nursing Funded Care has been ruled out ?
Yes, thank you for posting link to fact sheet. I have read it.

Mum simply needs physical help, prompting and reassurance. She has no nursing needs so would not qualify.