Oh will I ever feel that things get sorted without a struggle ?
My sister's and I are still trying to sort out a 'companion' for mum who has Alzheimer's (but still thinks there is nothing wrong with her).
It was initially discussed while she was in hospital almost a year ago but she was discharged before anything was put into place due to it taking so long to be linked with a Social Worker. (Mum was in hospital for 11 weeks and we were only linked with the Social Worker in the last few weeks before mum's discharge - which had being delayed because of it).
It was initially decided that care would be in place for when mum came home to me to bridge the gap from me leaving to go to work each morning until one of my sisters come to be with mum and also for a couple of hours at the weekend to give me a break.
Great ...... or so I though. The ward had become so chaotic that it was agreed mum needed to come home but that was before there had being time for care, direct payments or anything to be organised.
Finally things got sorted with Social Services and we were recommended to a care provider. We told them the hours we required (the important times were Monday - Friday 8am - 10am and possibly 2 hours on a Saturday morning) were linked with a lady who was introduced to mum and who began to visit. Now if this had of being started when she first came home from hospital I think mum would of accepted it better but because a few months had passed and she felt she didn't need anyone it made the situation almost unbearable. So after discussing it with the mental health nurse we decided that we needed to be postpone these visits.
Now I will admit we have probably left it longer than we should of to try again but we sort of got into our own routine between us but it has always being a nightmare for me and mum when I'm leaving for work in a morning with her getting angry, frustrated and upset
.
So the care provider was approached again (via one of my sisters to relieve me from some of the pressure of sorting everything out) about trying with a companion again STRESSING the times we required. So we linked with a lovely lady who has being meeting with mum and my sister for coffee once a week now for a few months. This is going quite well although mum sometimes likes her and sometimes doesn't
. Then we thought it was time to start the lady visiting mum at those 'important' times only to discover that she is actually unavailable at those times and always has being !!!! So why link her with mum ?
Last week my sisters and I discussed how difficult it is getting in a morning and we decided we needed to get it sorted with someone who could do all of the hours we require (it was also stated in the beginning that mum would be more accepting of just one person not different ones during the week). My sister got in touch with our co-ordinater from the care provider and went over mum's needs and that we need someone quite quickly (we are just going to 'bite the bullet' and tell mum this is what's going to happen in a morning). He was quite enthusiastic and said he had just the person. A meeting was arranged for Monday afternoon this week so I took time out of work to meet the new lady along with my sister before she is introduced to mum later this week. It seemed to go ok except that this lady CAN NOT do Tuesday's as it's her day off !!!!
Aaargh .......... when will this man ever listen to us !!!!!!
I am mad with myself for not saying something there and then and I don't know why I didn't but I just didn't think, but when I got home from work I realised what he had said and that's when I started to get cross.
I know it's not going to be an easy few weeks while mum gets used to someone visiting her but on top of that we still have the problem of Tuesday's. What does this man think will happen on a Tuesday ? Will mum suddenly be fine on this day ?
I feel at the end of my tether with it all ......... working full time and caring for mum is the hardest thing I have ever done in my life and I could do with just once someone listening and trying to make life easier instead of causing more stress.
I just felt I had to get it off my chest as no one seems to understand the pressure of it all
My sister's and I are still trying to sort out a 'companion' for mum who has Alzheimer's (but still thinks there is nothing wrong with her).
It was initially discussed while she was in hospital almost a year ago but she was discharged before anything was put into place due to it taking so long to be linked with a Social Worker. (Mum was in hospital for 11 weeks and we were only linked with the Social Worker in the last few weeks before mum's discharge - which had being delayed because of it).
It was initially decided that care would be in place for when mum came home to me to bridge the gap from me leaving to go to work each morning until one of my sisters come to be with mum and also for a couple of hours at the weekend to give me a break.
Great ...... or so I though. The ward had become so chaotic that it was agreed mum needed to come home but that was before there had being time for care, direct payments or anything to be organised.
Finally things got sorted with Social Services and we were recommended to a care provider. We told them the hours we required (the important times were Monday - Friday 8am - 10am and possibly 2 hours on a Saturday morning) were linked with a lady who was introduced to mum and who began to visit. Now if this had of being started when she first came home from hospital I think mum would of accepted it better but because a few months had passed and she felt she didn't need anyone it made the situation almost unbearable. So after discussing it with the mental health nurse we decided that we needed to be postpone these visits.
Now I will admit we have probably left it longer than we should of to try again but we sort of got into our own routine between us but it has always being a nightmare for me and mum when I'm leaving for work in a morning with her getting angry, frustrated and upset

So the care provider was approached again (via one of my sisters to relieve me from some of the pressure of sorting everything out) about trying with a companion again STRESSING the times we required. So we linked with a lovely lady who has being meeting with mum and my sister for coffee once a week now for a few months. This is going quite well although mum sometimes likes her and sometimes doesn't

Last week my sisters and I discussed how difficult it is getting in a morning and we decided we needed to get it sorted with someone who could do all of the hours we require (it was also stated in the beginning that mum would be more accepting of just one person not different ones during the week). My sister got in touch with our co-ordinater from the care provider and went over mum's needs and that we need someone quite quickly (we are just going to 'bite the bullet' and tell mum this is what's going to happen in a morning). He was quite enthusiastic and said he had just the person. A meeting was arranged for Monday afternoon this week so I took time out of work to meet the new lady along with my sister before she is introduced to mum later this week. It seemed to go ok except that this lady CAN NOT do Tuesday's as it's her day off !!!!
Aaargh .......... when will this man ever listen to us !!!!!!
I am mad with myself for not saying something there and then and I don't know why I didn't but I just didn't think, but when I got home from work I realised what he had said and that's when I started to get cross.
I know it's not going to be an easy few weeks while mum gets used to someone visiting her but on top of that we still have the problem of Tuesday's. What does this man think will happen on a Tuesday ? Will mum suddenly be fine on this day ?
I feel at the end of my tether with it all ......... working full time and caring for mum is the hardest thing I have ever done in my life and I could do with just once someone listening and trying to make life easier instead of causing more stress.
I just felt I had to get it off my chest as no one seems to understand the pressure of it all
