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In hospital and end of life care - Page 2 - Carers UK Forum

In hospital and end of life care

For issues specific to caring for someone with dementia.
Hi all,
Following on from last post my mother was discharged with a few weeks expected to live. I had had a meeting with consultant who said she could go back to residential home she didn’t have nursing needs and CHC didn’t apply. She went back to the home with a palliative care plan in place. It was explained to me when her time came, she would have access to drugs to ease the transition.
The home closed down the next day and I never saw her for 5 months. She remained stable, essentially a breathing shell but taking nutrition .
She died yesterday. She started to show some signs of breathing problems about 1130, the doctor was called at 1230, he refused to come out. He sent a script to the chemist for the drugs as there was no just in case box in the home. The home phoned 3 more time’s and doctor wouldn’t come. A nurse did arrive but she had no drugs. The drugs arrived an hour after she died. She died A horrible death, distressed and gasping for breath over a period of three hours.
I am heartbroken and very angry,
Would you complain or if someone detiorates quickly is this what happens. The surgery is blaming the home and vice versa.
Thank you all 🙏
I would DEFINITELY complain, to save anyone else suffering. Complain to the CCCG about the doctor, and CQC for the failure to ensure the required medication was available when needed, in their box!
When my mum was in pain, as I had POA, I told the doctor that relief of pain must be her top priority, regardless of the consequences. She died peacefully in her sleep.
Penny wrote:
Sat Mar 07, 2020 8:20 pm
How is your Mum now Worrywart?
Penny I am so sorry I never responded. The date of your post was the day the home lockdowned, she died a few days back. If you look at latest post that wasn’t the experience I wanted for her 😞
bowlingbun wrote:
Fri Aug 14, 2020 9:33 pm
I would DEFINITELY complain, to save anyone else suffering. Complain to the CCCG about the doctor, and CQC for the failure to ensure the required medication was available when needed, in their box!
When my mum was in pain, as I had POA, I told the doctor that relief of pain must be her top priority, regardless of the consequences. She died peacefully in her sleep.
Thank you. I have submitted a complaint and the doctor did ring. They home rang at 1230 and he refused to go out as I stated. He went through the logistics how it would not have been possible to get there in time etc and basically tried to distract from the point. The surgery is 2 minutes from the home.
It seemed every step of the way is a battle but at least now her battles are over.
Il see what they say, they will probabky blame Covid but surely it’s not reasonable for someone to suffer for 3 hours before death Especially when a palliative care plan is in place 😞
Hi,

I can only suggest choose a better care home?
Some are better than others. Look for older staff and as the manager to see their qualifications.
Look for supervised, communal mealtimes.
Good luck, and I hope things improve.
As a person declines, instead of accepting their reality and requirement for help, many reject it and try harder to do thongs for themselves that they can no longer do.
Don't worry as this is natural.
At some point you have to let go and let nature take its course. It doesn't mean you don't care, and your relative is still being cared for.
Hello ,

So sorry to hear that. Apologies my reply was out of sync with the posts. What you have described is a natural death which can be noisy with the breath rattling. This is normal and there is little a doctor would do. It is more distressing for the onlooker than the person. What is lacking is any prior information to the family of what to expect, which leaves people feeling powerless and not understanding what is happening. That's my view. The process of dying is never discussed. Therefore it is a shock. The doctors lack of reaction is because they've seen it all before and they can't do a lot. Their job does not entail sitting by bedsides of those who are passing. That's for family and nurses.
Might be annoying and distressing to you, but that is the harsh reality.
If you feel the care home has let you and your mother down in these distressing circumstances then you can prosecute the care home. They should have been better prepared for end of life care.
See citizens' advice. They are very good.
Sounded a complete nightmare.
There is a lot of task allocation when it comes to what doctors do and don't do, and where the care home takes over.
You will be able to point to where they did not do their job as expected of a care home at end of life.
Particularly if from your experience there was a breach of duty.
Good luck!