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Carers UK Forum • Help with understanding CBD
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Help with understanding CBD

Posted: Thu Jun 28, 2007 6:57 pm
by Judith
Hello, this is my first use of this forum and I am hoping to find out more about a disease called CBD - cortical basal degeneration. My mum has it and she seems to be deteriorating quite fast but I don't know which of her symptoms and behaviours come from CBD and which maybe dont. I feel we should maybe treat them differently. Has anyone any experience of this disease?

Hi Judith and welcome to

Posted: Thu Jun 28, 2007 9:03 pm
by rosemary
Hi Judith and welcome to forum.

A great bunch of people here and I hope you will feel at home.
Hopefully someone will know what you are coping with but in meantime I have been looking round on internet to see if any more help available to you.The only forum I could find specific to your mams illness was a Europe based one.There was only one posting about cortical basal degeneration back in April and it never got any replies.
It seems in UK your best bet is going to be the Alzheimers organisation.This next link shows the contact details for the Gloucester branch.They say they can give you support and advice on all forms of dementia and sources of help in Gloucester.

http://www.alzheimers.org.uk/BranchWebs ... /index.htm

I hope this is of some use to you.Please keep posting and we will help support you in any way we can.

Chin up
Rosemary

Hi Judith, Just like to

Posted: Thu Jun 28, 2007 10:33 pm
by Debbie
Hi Judith,

Just like to welcome you to the forum!
I'm sorry I don't have any information for you but just wanted to say Hi!
Take care Deb x

CBD - your replies

Posted: Fri Jun 29, 2007 1:20 pm
by Judith
dear Debbie and Rosemary
Many thanks for your quick replies, nice to hear from you.
I have followed the alzheimers link and it seems that there are some books produced by the Alzheimers society that might help so i will investigate.
Whatever the problems facing you, I hope they become easier to cope with
Thanks again

Hi Judith Just thought I would

Posted: Fri Jun 29, 2007 3:34 pm
by Christine Carers UK
Hi Judith

Just thought I would mention that Contact a family have some information posted about this condition. You can view it here: www.cafamily.org.uk/Direct/c73.html

There also some links to other support at the bottom of the page.

Hope this helps.

Christine

CBD - your replies

Posted: Mon Jul 02, 2007 8:46 pm
by Judith
Christine
Many thanks for this info - it is good to amass as much information as possible so any links thatmention CBD are verywelcome. I had thought that it was a disease only of the elderly - i hate to think thatt attacks much younger people - or even chldren.
Hope this is not true of you
Thanks again
Judith