Hello, this is my first use of this forum and I am hoping to find out more about a disease called CBD - cortical basal degeneration. My mum has it and she seems to be deteriorating quite fast but I don't know which of her symptoms and behaviours come from CBD and which maybe dont. I feel we should maybe treat them differently. Has anyone any experience of this disease?
Hi Judith and welcome to forum.
A great bunch of people here and I hope you will feel at home.
Hopefully someone will know what you are coping with but in meantime I have been looking round on internet to see if any more help available to you.The only forum I could find specific to your mams illness was a Europe based one.There was only one posting about cortical basal degeneration back in April and it never got any replies.
It seems in UK your best bet is going to be the Alzheimers organisation.This next link shows the contact details for the Gloucester branch.They say they can give you support and advice on all forms of dementia and sources of help in Gloucester.
http://www.alzheimers.org.uk/BranchWebs ... /index.htm
I hope this is of some use to you.Please keep posting and we will help support you in any way we can.
Chin up
Rosemary