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Carers UK Forum • Caring for someone with Alzheimer's/Dementia - Page 2
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Re: Caring for someone with Alzheimer's/Dementia

Posted: Tue Nov 15, 2011 2:17 pm
by malc
thanks for the replies,she takes her aricept in the morning and the kitchen light is left on so she can see the light through the gap in the sliding door of the bedroom(ground floor extension),i thought i'd covered all bases that's what is so upsetting about it,lavender oil worth a try,to be fair i'd try hanging a picture of mickey mouse on the wall if i thought it would help.

Re: Caring for someone with Alzheimer's/Dementia

Posted: Tue Nov 15, 2011 10:41 pm
by entity
Malc,
Is the coordinator a continuing healthcare nurse trained in mental healthcare? If this is not the case then I would suggest you request a contact number for a specialist mental health nurse, because your wife is entitled to continuous assessments according to NICE guidance, (and she doesn’t have to be in a care home) to receive these standards.

http://www.nice.org.uk/media/7EF/3F/Dem ... andard.pdf

You could contact “Admiral Nursing DIRECT specialist dementia nurses offering support. They are always posting on facebook and offer regular chats online.

“Admiral Nursing DIRECT is open now until 8.45pm. If you have any questions or concerns about dementia please call 0845 257 9406 and speak to an Admiral Nurse. direct@dementiauk.org

Tips - lots of hugs and reassurance worked for a while but, if the person is in the late stages there is very little one can do, other than seek medical help for easing brain disturbances.

PS, a person with dementia, doesn't have to be incontinent to get urinary tract Infections - Carers should keep an eye on the water works regularly to check; colour, smell, quantity leaving the body otherwise kidney damage could occur and this often leads to dehydration.
I also agree with the above a well lit room and lavender does work well in the early stages to help calm the mind.

Re: Caring for someone with Alzheimer's/Dementia

Posted: Wed Nov 16, 2011 12:24 am
by malc
i'm sure the care coordinator is trained in mental healthcare,she's good,as much my shoulder to cry on as the wife's,not sure how i'm supposed to check for urine infection discreetly short of sitting in the loo with wife which aint going to happen,i just think it's part of the alzheimers because we're also getting to the point where if she had her way she would never go out because she feels safe in home,my dad was like this when he got alzheimers and if i remember correctly it was about 2 months after he took a turn for the worse and ended up in a nursing home.we've had the tears when she sat in the car at shopping and was scared to go in the supermarket,we're off christmas shopping with eldest tomorrow ,i just hope she will come without to much discussion

Re: Caring for someone with Alzheimer's/Dementia

Posted: Fri Feb 03, 2012 12:23 pm
by brogusblue
This is the first post down this end of the forum .. Image Image

Some of you will have read my posts about the problems i was having my mum and trying to get help.. My mum was told that she has vascular dementia yesterday and they are looking to emergency respite care by next week to give me a break.. then they are looking to get funding from the nhs to fund my mums care and then put her in a home where she can get the care she needs.. I have been caring for my mum nearly 21 years now and now its starting to get too much for me so hopefully they can sort it..

Re: Caring for someone with Alzheimer's/Dementia

Posted: Tue Mar 20, 2012 10:29 am
by entity
Eating!
Dementia can greatly affect a person's relationship to food and eating. The behavioural, emotional and physical changes that take place as dementia progresses can all have an impact upon a person's eating habits and on their intake of food and drink.
http://www.alzheimers.org.uk/site/scrip ... yID=200367