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IS IT ILLEGAL NOT TO HAVE RESPITE - Page 2 - Carers UK Forum

IS IT ILLEGAL NOT TO HAVE RESPITE

For issues specific to autism / Asperger Syndrome.
According to an advocate who had some advice from a solicitor, Babes pay and my carers coming under the CCG NHS would be difficult to legally force them to provide anything. So it's looking for being forever trapped with nowhere to go. Might think about going to the press
Petty, I'm not allowed to swear here, so I'' try and moderate my language. The advocate is talking out of his backside!

If someone has care funded by NHS Continuing Healthcare, then all their health needs AND their social needs should be met, completely free of charge.

Google NHS Continuing Healthcare Framework for the rules.
Will do that Bowlingbun, thanks
https://www.carersuk.org/forum/support- ... read-35998

( Main thread )

TOP UP FEES ? : CHC / NHS CONTINUING HEALTHCARE ( NO SUCH THING !!!!!! )


https://www.justcaringlegal.co.uk/nhs-c ... re-top-up/

( Section within the main thread and to an external site. )
Hi Patty

Sorry you’re having so many problems with Social Services...

Your daughter is lucky that she was discharged after 14 weeks - could you google ‘Pathological Demand Avoidance’ go to the NAS website and tick how many apply to your daughter - pathological is changing to extreme

https://www.autism.org.uk/about/what-is/pda.aspx

If there is several points then that could be the reason for discharge as MH hospitals deem PDA people as ‘untreatable’ (trust me to have that something like that!)

You daughter must be on enhanced PIP (care & mobility) from 16? You are ONLY legally allowed to pay a contribution from the ‘care component’ from the 7 day period she receives respite - I would also challenge the fact she has 2-1 carers by the fact you have to cope alone?

Your daughters ESA & Mobility can’t be taken as contribution to ‘any’ care - I doubt the carers take her out and claim mileage?

Have you tried Irwin Mitchell for community care lawyers? If you require the assistance of a autism specialist on PDA read my topic post I’ve posted?

Check out ‘shared lives’ as you should be getting more than two a year also it’s your choice when you take respite - book it sooner and take no for an answer!

What was your daughter’s schooling did she go or was it disrupted?

Jamie (fighting back for autism)
There is a facebook group for parents of children with PDA. It doesn't apply to my son but was mentioned on another FB group I belong to.