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Supported Living - Page 5 - Carers UK Forum

Supported Living

For issues specific to autism / Asperger Syndrome.
Hello there

Update

My son moved into a flat which proved unsuitable.
Neighbours a nightmare! Other issues too. Was a private rental.

The council have found suitable accommodation through SARG now at last.

Thank you for all advice given.


Fingers crossed this one works!

PENNY..How is your daughter getting on with the noisy neighbours below?
Cloudygal,

Nightmare about the neighbours at first flat ( - more should be done about anti social and noisy neighbours - we have them too.)

What is SARG? (Googling came up with Suffolk Amphibian and Reptile Group (SARG)!)

Hope the move goes well, keep us posted.

Melly1
Melly

Thank you!

SaRG

They are the supported housing accomodation group within our council.

If someone has a social worker and need for housing with support they can be referred.

Every council should have one but maybe called something else in different areas!
The problem with many authorities is that most people don't have an allocated social worker, annual reviews aren't being done properly, and older parents are not being asked routinely about future plans for their sons and daughters.
Cloudygal wrote:
Tue Aug 24, 2021 9:17 pm
Hello there

Update

My son moved into a flat which proved unsuitable.
Neighbours a nightmare! Other issues too. Was a private rental.

The council have found suitable accommodation through SARG now at last.

Thank you for all advice given.


Fingers crossed this one works!

PENNY..How is your daughter getting on with the noisy neighbours below?
I did post on another thread Cloudygal. Not good really. Will PM you.
Penny

Sorry to hear that..

After I asked you how's it going on this thread I saw your other thread.

It's so difficult isn't it . You build your hopes up that a place is going to improve your life and your daughters and then it just doesn't.

I will look out for your message.
The biggest problem with SL is "future proofing" it.
In my area, my son and four other parents were persuaded that it was the way to go, that SSD would support them etc.etc. but the reality has been very different. The gaps have really been highlighted by the pandemic, when day services and/or care staff were withdrawn! Leaving our children with little or no care. My son lost all his day services, not replaced as they should have been according to his care plan, with extra hours. Left alone for 19 hours a day.
Others, with both parents living, had their children back home, undoing all the good work to get them more independent. Some of these parents were 80+!

The biggest challenge is not the right accommodation, but the right long term care, for when you are no longer around to fill in the gaps.
BB

It is certainly my worry..
Cloudygal …… have sent you a PM.
We had an assessment after 7 years this week, my son used to have them yearly then he joined a council run support group they found him voluntary job at age concern coffee shop which he had for 10 years but unfortunately ended due to the pandemic and they have said will not be opening again any time soon. So I contacted the council for assessment on his needs as after 18months of being at home he did not want to go out, took nearly 3 months to get assessment. They have not suggested much and when I mentioned supported living as my husband is 69 and I am 66, my son said not yet as he does not want to be lonely. I have asked can we at least have a look at what is on offer so he can see what it would be like. Her reply was well if Pauls is not ready should we, but my main concern is if anything happens to my husband and I what will happen then.