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Supported Living - Page 4 - Carers UK Forum

Supported Living

For issues specific to autism / Asperger Syndrome.
Cloudygal, I have PM'd admin about your PM issue.


Thank you. It may be me doing something daft, not sure. Juggling so many balls in the air at the moment!

Have paperwork piling up on top of everything else..and it cant wait!
This info might help if you get a spare minute to look

https://www.carersuk.org/forum/forum-gu ... -pms-34197


Thank you.

here is link to the supported place, Londonbound was telling us about. She PM'd it to me.
Londonbound wrote:
Wed Jan 29, 2020 12:40 am
If Cloudygal can't receive messages or can she , can you pass this on or something.
It may interest you as well.

Wasn't sure if I was allowed to post a link about this place on the forum didn't want to get in trouble.

https://www.hnha.co.uk/our-services/the ... xtra-care/

Sounds fantastic, I have not been there but have heard about it.

Anyway if you can pass it on?

or if you are allowed to post it on the forum.

Thank you


Thank you so much for sending that link to Melly. Its definitely the kind of place that could well suit. I will keep an eye out for similar close to home.

It's good to get an idea of what's around


Thanks for posting it here.

Had a bit of a tricky day today. few days actually so the time is coming closer for this kind of thing.
In Hampshire there is something called SARG, Supported Adults Residential Group. They hold details of everyone looking for housing who has very special needs, and they plan and build what is needed in conjunction with providers and the NHS. This is the place to start. Very often the flats are provisionally allocated before they are built!
Cloudygal wrote:
Thu Jan 23, 2020 4:23 pm

Thank you for your reply.

Support on site does seem most ideal..I agree.

I am sorry it didn't work out for your daughter. That is a shame especially after 11 years..what went wrong?,

My son is 24

Social services have not come up with anything yet.
I suspect they are not keen to tell people of vacancies even if they come up as it means they then have to do a full support package instead of parents doing it!

Hi Cloudygal, sorry it took me so long to reply. It's difficult to pinpoint exactly what went wrong with A's placement. I think she didn't receive the kind of support she was expecting and the staff didn't get the response they were expecting from her for the support they were willing to give her. They kept changing her schedule because they thought whatever one was in place wasn't working, which confused her. She then developed health issues, which the staff didn't make allowances for and she said she wanted out about the same time as they also wanted her out.

She still has those health issues, both physical and mental, and hasn't been out of the house for several years now. One major problem she has is her hair which is unmanageable and she won't get it cut or let me help her with it. Now, with the current situation, everything's on hold anyway.


What future plans do you have for your daughter as supported living didn't work out?,
Cloudygal wrote:
Sat Jan 18, 2020 8:56 pm
Would appreciate some advice from those who have walked this path before...
Just started to look for my oldest son who is autistic.
Is it best to stick to housing associations or should I look at private landlord too.
It's all a bit thin on the ground as it is.
Then theres the LHA . What if it doesn't cover it all?,
It's all so confusing!
I was up half the night researching and I'm still no clearer in my mind. I have heard theres a dhp for people who still cant pay the full rent...has anyone managed to get this long - term.

I have been diagnosis under DSM-5 Scale Level 2 Autism. I live in a semi detached sheltered bungalow with wardens now called support workers visiting me 5 times a week. Because of my experiences with neighbours, i moved about 30 times or more because i am an easily taken advantage off and very impressionable, many have done many things to me. I deffo would no recommend you put him in private accommodation, esp. in terrace this will put them in great danger.
Housing association but in a good rural environment wih low crime or sheltered semi detached they will give it with the right reasons for safeguarding
It would be better long term if he was in a group situation to avoid isolation. What are Social Services doing to help? My son has almost all his rent paid through Housing Benefit.