My nearly 20 yr old with GDD and autistic traits likes a very tidy room but he hoards strange things. For years he had a huge box of toilet roll tubes in his wardrobe. i had to discreetly take a few out every now and then or they would have been over flowing!
The problem comes once they leave home.... I also have a 40 yr old brother with cerebral palsy (mild physical disabilities and moderate learning difficulties) coupled with autistic features and he's now living in his own flat with support for 6 hours a day. There's no sign at all of what the support does! They won't do anything unless he asks them to so he lives in an absolute filthy pit! He can't get his head around planning cleaning. laundry etc and they refuse to do anything without him taking the lead. Without being too graphic he has bowel problems and there's often 'mess' all the way from his bedroom to the bathroom but they say they're there to support him and not clean up after him so it stays like that til my mum (63 with fybromyalgia) goes and cleans for him.
My mum suggested drawing up a weekly planner and having it on the kitchen wall so that R could see what was going to be done each day but the agency won't even do that. R will do things IF there is a clear plan of action but he can't get his head around making the plan up. Next problem is R has extremely challenging behaviour and this is only agency left prepared to work with him. My mum raised the issue of health and safety and said R was at risk of infection and the agency said that was his problem if he chose not to clean!
The whole 'care in the community' thing is a farce IMO.
The problem comes once they leave home.... I also have a 40 yr old brother with cerebral palsy (mild physical disabilities and moderate learning difficulties) coupled with autistic features and he's now living in his own flat with support for 6 hours a day. There's no sign at all of what the support does! They won't do anything unless he asks them to so he lives in an absolute filthy pit! He can't get his head around planning cleaning. laundry etc and they refuse to do anything without him taking the lead. Without being too graphic he has bowel problems and there's often 'mess' all the way from his bedroom to the bathroom but they say they're there to support him and not clean up after him so it stays like that til my mum (63 with fybromyalgia) goes and cleans for him.
My mum suggested drawing up a weekly planner and having it on the kitchen wall so that R could see what was going to be done each day but the agency won't even do that. R will do things IF there is a clear plan of action but he can't get his head around making the plan up. Next problem is R has extremely challenging behaviour and this is only agency left prepared to work with him. My mum raised the issue of health and safety and said R was at risk of infection and the agency said that was his problem if he chose not to clean!
The whole 'care in the community' thing is a farce IMO.