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Autism - Page 3 - Carers UK Forum


For issues specific to autism / Asperger Syndrome.
Hi Katie,

My son has learning difficulties, it's a big responsibility.

I would suggest that you write out the current problems, and then think about what he NEEDS.

Then think about the options. As I see it there are three.

Doing nothing
Waiting for Social Services to sort themselves out

Then score them against his needs in the next 6 months or a year.
Can he wait until he is 18 for help from Adult Services?

From what you have said, it seems he can't stay home and do nothing, that's going to make things worse.
SSD are useless.
So doesn't that just leave hospital?

I understand that in many ways that is the least attractive option, but are the others any better? Only you can decide.
My son has got worse and worse hardly eats never comes out of his room not showering has been to school all of three times since September otherwise he's home.
Had the crisis team here they say they can't do anything as he won't engage or he tells thee he's fine.
I'm phoning my social worker frequently.
Have a professional meeting tomorrow an emergency meeting.
I have very mixed feelings now as I feel I can't help him and nobody seems to be able to get him out of this hole.
This has been going on so long I fear ss will look to do something in the end..
As a mother it's so sad to see your child this way
Katie, has anyone offered you a Carers Assessment, to discuss how all this is affecting YOU.

It's all vey well saying they can't do anything if he doesn't want it, but surely you are now almost housebound?
I have been offered counselling that was two months ago nothing came of it
I suffer with depression and feel it's taking its toll.
Mental health don't want to know we had an argument at the meeting just fobbing me off as usual..
Katie, it is your RIGHT to have a Carers Assessment from Social Services. Regardless of anything else that is going on with other services.

Who offered you counselling? Have you chased them up?
Yes I have chased them up they just say they will be in touch..
It was originally organised through ss.
I will chase it again.
I will also ask about the carers assessment
Thanks so much if it wasn't for this forum I would not know half of these things
I want to remain strong for my son but I'm mentally drained
It took me 4 years to get the LA to finalise my son's Special Educational Needs Statement, and can still remember how drained I felt at the end of it all.
This seems to have been going on for a long time. No wonder you're so tired and depressed with it all. People on the autistic spectrum tend to slip between the various services and don't get the help they need. I see from one of your earlier posts that CAHMS turned you down because your son's problem was a mental health issue. Maybe they work differently where you are, but after my son was diagnosed with Asperger Syndrome he was referred to a senior psychologist in our local CAHMS, who was an expert in autism, and stayed with that service until he was well past 18.

I do hope things start to look up for you and your son.