My son is 11yrs old and is to start high school in September. He has not accessed full education for 4 years. At the end of every school holiday he is always awake crying with stomach pains/pains in his legs; this has been looked at and nothing physical found. On the occasions he has attended school he has mostly sat in the reception area with his head down and hair covering his face. He had a short period where at playtime whilst the other children were outside he would settle into the classroom and stay there when the other children came in and do maths lessons althouvh it didnt last long. He has now reverted to not going to school at all, sitting behind his bedroom door so i cant get in, he even sleeps on the floor rather than his bed. CAMHS sent an email to school saying he has social anxiety and his need isnt high enough for them to work with him. He has said he wants to die on numerous occasions. Step2 said they would offer therapy but i then found out thwy had nobody to provide this, though it wasnt Step2 who informed me of this. CDC did an EHCP assessment which i had to attend alone as my son sat behind his bedroom door refusing to go and crying. At this appointment i was informed that the referral they had to work with my son was rejected. During this assessment the Dr said that my sons social anxiety and anger issues (he has hit me and his older brother and also caused a lot of damage in the house) would have to be looked at before anything else but as i had responded with yes he has good days when asked i was told he does not have ASD, as there are no good days. Im not even sure of what a good day iais for the 'norm'. I was told tgat when he had therapy if it did not work get the dr to rerefer to CAMHS and he would need to see a psychiatrist but that CAMHS wont work with him whilst he is on the books of Step2. Step2 are now not providing therapy but he is apparently on a waiting list to be seen by them therefore he cannot be rereferred to CAMHS. We seem to constantly hit brick walls and go round in circles. I moved 2 years ago for work after being tld by a professional he would be fine and to just allow him time to settle and adjustbut had to resign to look after my son. My son doesnt engage with any other children and a very small number of adults on good days, i spend everyday in the house trying to coax him out of his room and go to school, he only leaves his room now and for the past few weeks to eat and drink with the occasional hour or so he might stay down extra to chat before disappearing to his room. Childrens services are not supporting us as there are no safeguarding issues but if he gets a diagnosis disabled childrens services can support us so i was told. We cant have a carers assessment as he has no diagnosis as far as im aware. I dont know how to move forward from this point. I did email the local mp explaining all this a couple of days ago in the hope of pushing something but as yet i have heard nothing
