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My wife has ms and I’m struggling to support her - Carers UK Forum

My wife has ms and I’m struggling to support her

Socialise and chat about other areas of your life
Hello my wife was diagnosed with ms 3 years ago. I don’t think I’m giving her the comfort and support she requires.
Hi Anthony, welcome to the forum.

How much support does your wife now need?
Are you getting any help from the NHS? Social Services?

When did you both last have a holiday?
Hi Anthony,
welcome to the forum.

The MS society has some suggestions on how to support someone with MS which you might find reassuring: https://www.mssociety.org.uk/care-and-s ... ne-with-ms

One of the best ways of supporting your wife is to look after your own wellbeing. If you are able to pursue a hobby or interest you enjoy and get some time to yourself then your tolerance levels and ability to care will benefit and so will your wife.

Melly1
Anthony_2207 wrote:
Fri Jul 15, 2022 6:01 pm
Hello my wife was diagnosed with ms 3 years ago. I don’t think I’m giving her the comfort and support she requires.
Please ask the council for a care needs assessment. This is your opportunity to discuss everything. Make the most of it. Also a part time hobby is a must. I do reading or beadwork whenever Milo does not require me to look after her.
Dear Anthony_2207
Hi. My name is Kristie and i am a volunteer online community host for Carers UK. It sounds like you are in a difficult situation with your wife and i hope that with this forum and the other carers they will be able to help you work things out. Carers UK also have a telephone number and email address which i hope you will use if necessary.
So, welcome to the Forum! You are not alone in your caring role, we are sure that many on here will understand exactly how you feel and will offer you support. Caring can be very lonely and the pandemic has made caring responsibilities challenging as many carers have been socially restricted and unable to attend social groups etc.
Carers UK are running two online weekly meet ups for carers and you can find the information on how to register at:-Care For A Cuppa:-https://www.carersuk.org/help-and-advic ... ne-meetups. There is another meet up run weekly online and it is called:- Share And Learn:-https://www.carersuk.org/help-and-advic ... e-sessions.
Our telephone number is 0808 808 7777 and this line is open from Monday to Friday between the hours of 9am-6pm. Our email address is (advice@carersuk.org).
They provide information and guidance to unpaid carers. This covers:-
-Benefits And Financial Support
-Your Rights As A Carer In The Workplace
-Carers Assessments And How To Get Support In Your Caring Role
-Services Available To Carers And The People You Care For
-How To Complain Effectively And Challenge Decisions
Best Wishes
Kristie