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How long? - Carers UK Forum

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Socialise and chat about other areas of your life
My wife has been struggling for some time to manipulate cutlery and therefore to eat, I cut up the obvious things like meat into either strips or bite-size chunks but try and leave her something to do, but it's stressful just watching her struggle, she no longer appears to know how to hold any item of cutlery and to all intents and purposes has forgotten why she has an opposable thumb.

There is a plethora of adapted cutlery out there, but without the experience to ascertain what would be best for her, I've sent an email to *Adult Services* asking for some advice and maybe an assessment by an OT, I also pointed out that it's some considerable time (years, not months) since she last had a *Needs Assessment*

I had an almost immediate automated response that said, (amongst all the disclaimers and excuses) :- " We will contact you if we require further information or if you require a response, so you do not need to email again".

So, how long is a reasonable time to wait before ignoring that?
Google search..

If your wife has had previously an O/T - you can make a self referral.

https://www.nrshealthcare.co.uk/eating- ... y-aids?p=2

https://www.completecareshop.co.uk/eating-aids/

Before you purchase a aid O/T would be the your first port of call.
sunnydisposition wrote:
Tue Feb 11, 2020 9:47 am
Google search..

If your wife has had previously an O/T - you can make a self referral.

Before you purchase a aid O/T would be the your first port of call.
That was the purpose of my email to *Adult Services*


I'm in need of some help and advice with a problem that my wife has developed. You will have dealt with her before: name and address. She has MS, is unable to weight-bear, and has in the last few months developed fairly bad tremors, mostly in the right arm/hand. She really struggles with eating, not the chewing/swallowing part, but control of cutlery.

I can see from looking at different suppliers that there is a range of cutlery with different features and functions, weighted handles, fat handles, bent handles etc etc. I need to know which would be the correct design to help my wife. I'm unable to ascertain that myself as she resists my attempts to get use her index finger as any able bodied person would and appears to have forgotten why she has an opposing thumb.

We have a wav and so are able to travel if there is somewhere that she could be assessed or would equally welcome an assessment at home in New Milton; it's been quite some time since she had a "Needs assessment."
Ayjay, Hampshire CC couldn't organise a party in a brewery!

Unless things have changed since mum died, there is a thing called "OT Direct" in the county, you can self refer. The NHS and SSD have a joint equipment store, I think it's in Basingstoke, so whether you get stuff ordered from the NHS or SSD it comes from the same place.
I'll look into OT Direct later BB, I took a quick look this morning but I couldn't see any ordering or referral info, I guess I'll have to contact them first, but I'll take a longer look later.

I had an emailed reply from *Adult Services* this afternoon, (so, much quicker than I expected), but less helpful than it could have been.

Partial quote from the email:-

" I have included a link below to the Disabled Living Foundation’s fact sheet on Eating and Drinking equipment which is really informative. I would advise ordering and trying the equipment and returning it if it isn’t suitable".


When I read the section from that link titled *Assessing your needs*, the very first sentence says:-

"If you have not had an opportunity to discuss your eating and drinking difficulties with a professional, you are strongly advised to seek an assessment of your situation".

You couldn't make it up, could you? Actually, I think I probably could.
" I have included a link below to the Disabled Living Foundation’s fact sheet on Eating and Drinking equipment which is really informative. I would advise ordering and trying the equipment and returning it if it isn’t suitable".
Posted with the hope of removing the need to visit, assess and fund the necessary aids.

Is the email signed? (to work out if it was written by duty social worker or admin staff etc)

Melly1
Typical Hampshire. They don't even know their own policies.
Melly1 wrote:
Tue Feb 11, 2020 6:21 pm

Posted with the hope of removing the need to visit, assess and fund the necessary aids.

Is the email signed? (to work out if it was written by duty social worker or admin staff etc)

Melly1
Those were my thoughts, but my wife's methods of using cutlery are so bizarre that I really don't feel qualified in any way to choose the best option.
She doesn't use her left hand very often, won't extend her index finger along the back of an item to offer some control, she doesn't use the same grip on any item consistently. I don't really know where to start. It seems stupid to just order something in the hope of hitting on the ones with right features eventually.

Yes, I have a signed email, and I'll be responding and suggesting that something more needs to be done rather than me just ordering random items until we find one that works.