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Carers UK Forum - Search
Hi there, we're ok! OH has lots of seizures,at the moment we're around 10 - 12 daily - it's been better but it's been a whole lot worse too so we're ok. We use seizure alarms and wander alarms to help cope with things and they're a Godsend - don't know how we'd cope without them! http://www.carersuk...
Thanks, we're weathering the storm ok, things are settling down now he's awake. I'm trying not thinking about tonight. http://www.carersuk.org/images/icon_confused.gif That's the main thing with sleep seizures, you know they're coming and when it's like this, they sure come thick and fast - but we'r...
What a night! OH's has felt unwell the last few days, usually that means there are sniffles on the way so we've just been keeping an eye on things. Anyways, no sniffles but a massive increase in seizure activity. He was seizing every half hour last night and we're feeling it today. http://www.carers...
His money will reduce either way. If he appeals, he has a better chance of getting it back and he won't be pushed to look for work in the meantime. Yes, Charles is right! Remember every time you sign for JSA you're saying you're fit to work and that you're actively seeking work too! When this happe...
What a start to the new year! Went to get Coo's meds as usual and one of his AED's is discontinued! Our GP, Neuro, E-nurse nor pharmacist a. thought to tell us this was happening and b. knew anything about this - what a mess! He's been on Epanutin as a core drug for the over 25 years. His one taste ...
Hi Paul, yes our SDS care package lists everything in the assess. of needs and support plan for both C as a disabled person and me as a Carer. From the care required both from me as his Carer and also input from our daughter (she's our PA's), to cover my respite - sleep nights each week also our hol...
Hi guys, Caring magazine is running a story on the Scottish Parliament from Carers own words. I think it'll be the next issue as I was asked to submit my thoughts and pic last month. It should be interesting - all the different takes on the same day! http://www.carersuk.org/images/icon_confused.gif ...
I think things will be left well alone for now. Hubby has had enough to deal with recently. I still find it unbelievable that people with real problems that affect their daily living so much have to jump through hoops to prove it. Totally agree - everyone knew the decision to pass as fit for work s...
We had so much trouble before with both DLA & ESA (appeals, tribunals) that it stressed OH a great deal, now he just won't rock the boat so to speak. I have only just filled in the form for Carers Allowance, as it is such a minefield. Oh Studygirl you and me both! We had a dreadful time with an inc...
<t>Hi crocus, we had them too but didn't like using the rectal dias. Luckily, even during clusters, does come round enough to get some oral diazepam in ok!<br/> Yet again, it makes me realise just unique a condition E actually is! How different the condition and treatment is too!<br/> I guess we jus...