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Carers UK Forum - Search
<t>I suggest you get on to SS about direct payments which is where you employ the carers we did this 5 years ago now and have not looked back we had many years of agency staff who whilst in many cases reasonable individuals are on minimum pay and employed under difficult conditions they will be paid...
Thanks NanaNana, it's happened now, we spent our first night apart for several years last night, niether of us got much sleep but hoping things will get better soon. Thanks everyone for your kind words.
Eun I wouldn't like to say which is worse and can only sympathise with you, as a fellow carer and parent.
<t>Well what a career it has been.<br/> Boyfriend to husband to husband / carer to carer / husband and now carer, on Tuesday I move out of what was our bedroom so that a we can put a hostpital bed into it, it does not look as if we can get a second single bed in as well as allowing the wheelchair ma...
<t>Many thanks Eun, but I was actually after specifics of LGMD. My OH was diagnosed many years ago in fact before it was discovered that there were I think 11 different types, what I was trying to find was some info on what could be expected in what I fear are the final stages rather than treatment....
Unfortunately the doctors are really only treating symptoms as they occur and we are not under a MD specialist.
<t>Can anyone help? I have gone through all the websites and whilst they have a lot of info nothing is particularly helpful understandably the main focus is Duchene. My wife is now over 60 and appears to be deterioating ever faster she now needs to use a ventilator overnight which has improved her d...
<t>I have had similar in the past and have rung to ask if they have facilities for my wife eg disabled toilet, hoist, will they pay for private ambulance etc etc. They normally say oh yes we have a toilet but when we get on to hoists etc they decide its not really worth it. Failing that ask for a ho...
What can a man say except reverse everything on your lists and I have to do the pink jobs as well as the blue. Unfortunatley not much good at the blue ones anyway despite being a man!
Totally bemused Frandrake