Just saying Hi. I think there are lots of people here who care for children. I look after my elderly parents, one has HD and the other suspected dementia. I also have young children of 5 and 7, and can only begin to imagine how hard it must be to have a sick child. You say he has had a tough time la...

Aw, not confused, you have described your difficult situation very well. You have a lot on your plate and need some help. It sounds as though you don't have any outside help a the moment for yourself? Perhaps now then is the time to have a Local Authority needs assessment for yourself AND your partn...

This sounds a bit OTT to me. My Dad is subject to a Deprivation of Liberty order (or whatever it is called) as he is in a hospital against his will. He lacks mental capacity and has to be there as there is no one who can care for home at home. My understanding is that the Deprivation of Liberty orde...

Jenny, those comment are both helpful and useful, thank you. I had contacted the HD charity and they had suggested one local home where they specialise in HD and have 12 patients currently, but social services have already said that it is too expensive and if my sister and I want to consider that, w...

Thank you so much for the replies. That is massively helpful and also massively reassuring. I find the system so confusing and that has helped hugely. I didn't realise that social services would look for somewhere as they suggested we started looking, which we did, but the care homes we have approac...

My Dad has Huntington's disease and is currently in a rehab unit where he ended up in March due to my Mum not being able to cope any more as we think she herself has dementia. His condition means he has a complex mix of psychiatric, behavioural, cognitive, and physical needs. The biggest problem is ...

Oh Emily, it is heart breaking. I can relate to a degree in that my Dad has a progressive neurological illness that he has had perhaps for the past 15 years, diagnosed around 12 years ago. I was a little younger than you when he was diagnosed. I am now 41. I have not been as responsible for his care...

Please don't feel bad about wanting to live your life! Your life is just as important as your Mum's if not more so, given you need to work long and hard to earn a pension these days for your own old age! It has taken me a while to come to this conclusion with my Mum and Dad. My Dad has been unwell f...

Warren, your post really moved me. Please believe your life and happiness is just as important as your Mum's. Please try and claw back some time for yourself to find a social life and a route to happiness. I was thinking about your situation and what if you were less reliant on carers allowance? Wha...

I have struggled with this for the past 5 years. I have a 5 year old and a 7 year old plus a 76 year old Mum with dementia and a 78 year old dad with a progressive neurological illness and v high care needs. I have felt pretty much constantly guilty that I am a rubbish mother, daughter, wife, sister...