Hi guys, we at last got our POA sorted out! I put it off for ages but its all sorted out now! M x

Hi Eun! I saw him and when I saw the name Robert I just knew he was your lad! Well done him - it all came across really well!
I gave him a wee cheer - let's hope things change and soon!
(((hugs))

Thanks for the information - this thorny one is going to come all our ways at some point!
(((hugs)))
M x

<t>Hi Paul, Lisa's seizures sound like Coo's - NFLE - short, rapid and aggressive in movement! We're still struggling too - every 10-15 minutes all night long and anytime he falls asleep so on and off all day. <br/> He's currently on Phenytoin - core drug -and vimpat - it helps a little bit so we've...

Hi guys hope everyone coped ok through the usual Christmas ups and downs!
Not been in for ages - things are just the same here. Coo's Still stuck on 10-12 seizures a day and hanging on in there.
How's everyone else doing?
(((hugs)))
M x

<t>Hi guys, We use seizure and wander alarms and would not be without them. They let me sleep between Coo's seizures and they wake me when he seizes or goes walk about during seizure activity.<br/> We opted for Easylinkuk alarms and not Tunstall - Easylinks a one off purchase with no rental fees and...

Hi guys, signed and shared!
M x

Thanks guys! We've been away for a few days! We went to Jesus Christ Superstar at the Hydro in Glasgow and it was brilliant! http://www.carersuk.org/images/icon_smile.gif We've got an SDS (Self Directed Support) care package, which allows us some flexible respite funding. It's made such a difference...

Thanks Sturdy,we rested up on my birthday as we were going away the next day instead! We went to Jesus Christ Superstar at the Hydro in Glasgow and it was brilliant! http://www.carersuk.org/images/icon_smile.gif We've got an SDS (Self Directed Support) care package, which allows us some flexible res...

Hi the wander alarm is really good! We got it from easylinkuk here's a link... http://www.easylinkuk.com/page14.html The one we have sits at the bottom of our bed and runs an infra-red beam so when OH's feet get out of bed and break the beam, a signal goes to my handset and either buzzes or vibrates...