<r>Many many thanks to everyone who replied, and sorry for the delay.<br/> <br/> I'd love to be able to combine appointments, but they are all at different NHS London trusts; we currently see consultants at St Mary's (urology), Bart's (gastro), St Thomas's (lupus), Royal Free (immunology), UCLH (rhe...

<t>Hello all, <br/> <br/> I'm sorry to introduce myself on such a downbeat note, but I'm having a few problems and not sure which way to turn. I hope the following makes sense, as it's a bit complex.<br/> <br/> Background is: my wife has been diagnosed with a few serious - and incurable - genetic co...