Hi Andy & welcome to the forum i'm Paul my wife also has epilepsy, Lisa's epilepsy is refractory meaning it can't be controlled but we've tried most treatment options over the years. I'm a bit younger than you at 48. Depression and epilepsy are closely associated with each other, i'm sorry to hear y...

Hi, No not at this moment in time but we have talked about it to obtain extra funding maybe in the future. It was the last government which sadly closed down the ILF (Independent Living Fund) where this was a pot of money for additional care needs so now there's no other option but to turn to the NH...

Hi, welcome to the forum and i'm sorry to hear about your family member. My wife has severe epilepsy and she has seizures most days, as you say though the side-effects can be just as difficult to cope with. In our case we have a support package in place by Adult Social Care which has worked really w...

Hi aec83, sorry to hear about your partner, he really should go through his GP if you suspect epilepsy and get refferred to a neurologist, medications could make all the difference and control his condition. Seizures do indeed wipe you out, i see this most days with my wife but her condition is seve...

Hi Alice, my wife's epilepsy has continued to progress over the years, Lisa has seizures or clusters of seizures most days now, however thanks to the help of Adult Social Care we have a care package in place to support Lisa enabling me to continue working. I hope things improve for your husband we'v...

Hi Alice, my wife has had uncontrolled epilepsy for many years and has regular seizures. We see a few different types of seizures but she can also have the Atonic (drop attacks), we also use a wheel chair out and about as this makes life so much safer. Depression can be really hard to deal with even...

Hi Derek, i'm sorry to hear of your wife, it's really hard to see your loved one going through this. My wife has severe epilepsy and has regular seizures, and juggling work with caring and doing household chores isn't easy. It might be worth you asking for support from Adult Social Care?, as when my...

well it works well for my family situation and all carers involved whether they be family or not, it gives my wife the full time care she needs, it gives her as much independence as possible with people she knows best rather than strangers, how dare you use my post in this way Chris, I hope your int...

under present rules with our council and Direct payments you can employ a family member providing they don't live in the same household, however in exceptional circumstances it can be possible employ a family member in the same household but this would have to be agreed with your Adult Social Care t...

I'm really sorry to hear of your situation, my wife has clusters of seizures and needs regular rescue medication to bring seizures to an end ,so needs full time care/support, I really hope your son gets some seizure free days?. Epilepsy is so unpredictable for those that are uncontrolled, we try our...