It is terrible knowing a loved one is in pain. I remember phoning anyone I thought might help my mum. I often got best advice from specialist nurse at a charity- in my case Parkinson’s UK, who advised me what to say to GP and others, to get better service
Yes it’s hard feeling responsible, and doing it as a ritual helps, my experience is that over time you can get more knowledgable and confident. I realise I often act confident with my partner, but am really anxious. I recently admitted this to my partner and found out he was covering up his anxiety ...
oh how difficult for it to now jump all of a sudden so quickly, but maybe because you are reeling from this crisis, it’s making you think you have less time than you’ve got. My partner has MS, which isnt in theory terminal, although related things can be-falls with internal bleeding, septicaemia etc...
Goodness other people on this forum will know better than me, but I am sure you don’t have to do this. I would be wary of any professionals trying to put pressure on you, but I think you need to be very clear and firm. Anyway they don’t know him and your situation like you do, and if they make assum...
It sounds not to late to register two LPAs 1 for health and welfare, and 1 for finance and property. A good GP who knows your dad can advise on whether that’s still ok. If not, you can still apply to the Court of Protection
Thank you, I think it is very brave of you to write about resentment, and it’s helped me to admit and write about it here. It is a very uncomfortable feeling and I don’t like admitting it either, I wish I didn’t resent as much, but I do. I mostly hide it, but after a while it bursts out and makes me...
Oh thank goodness for you people, and this forum. It’s so helpful, not just because I need to let off steam today, but also reading all your posts. For example I have felt inundated / buried in laundry and it’s good to hear someone else’s solution. It gives me ideas. It’s been so important to me rec...
I realise this post now maybe out of date, but I find it helps me to remember that what he says makes perfect sense to my dad, and that it’s me that’s doing my best, but not always following. As it makes sense to my dad, I try to enter his world as best I can, and join in, but it helps when the care...
As my partner is always saying.. life is so uncertain. I admire you for sticking with it. I’m afraid a lot of people don’t manage it, and you are. It seems obvious to me that sometimes you will feel numb, and sometimes flat, and sometimes bored etc. My dad has vascular dementia and I love and care a...
Oh wow thank you everybody for your posts and comments. It’s great to have the support. Ok I will get carers assessment, and I’m really glad you like dishrag, and that I’m not the only one who’s felt like that! I like keeping the tag, to remind me how I felt when I first logged in here. I am still v...