Like many parents have found out quite abruptly when you have a child with learning disabilities who lacks capacity you don’t get the option of advocating for them. More so when they become an adult. However, in unspoken terms, as well as indirect actions by the staff of services it is the case that...

Hiya Bowlingbun, The truth is that even though our situations are different, with myself living in the same home as my son and you not living with your son, we are both discriminated against in the same way and by the same organisations. We are discriminated against because we are mothers of a disab...

Under the Equality Act, consideration is given towards a situation of ‘being disabled by association’. It’s illegal to discriminate due to association with someone with a disability. This means, that you cannot be discriminated against just because you have a disabled person to care for in your life...

I'm not even going to get into the situation of autistic who are in A.T.U.'s. Only just to say it's far worse than it's ever been reported by the media. That includes its worse than the Winterbourne scandal investigated by Panorama. Social services are a 'pit' organization...they are trained and do ...

I agree with you Londonbound, I had all this all the way through my son's childhood and early adulthood. All through the '80s and '90s and up to 2006 I had no support for him whatsoever. In fact, he was almost 22 before any support was in place and that was only because he came out of the hospital o...

Hiya all, From my side of this, I have been through the same only I learnt from this experience. Now I pass the parcel to the allocated nurse who gets the run-around and has to tell me so. It's totally fair to place the burden on the services creating this problem. After all, they don't do anything ...

Hiya Londonbound, What it boils down to is neglect from services that are meant to be responsible and staff that are paid a wage to assist, especially with healthcare and social care needs. In most cases, they are deliberately not helping and adding to it by making things really hard or even impossi...

Hiya Melly, I have had both done, had his diabetes reviewed and his medication. The problem is impossible barriers are being placed in the way by demands of in-clinic appointments he can't manage because he's housebound. I don't like the way the situation is of having to fight these people but what ...

Services gave up on my son many years ago now and it continues to be the case all the way through 2020. During this year, he was allocated an advocate and come the end of this year he is now denied any advocate service, on the basis of ‘them not being able to see him’ due to the current COVID-19. I ...

It has been almost 9 years since my son was subjected to an unofficial lockdown of all community services. Since January 2013, he was prevented from taking allocated respite at a specialist health unit. They claimed he couldn’t be managed and he was punished for a short-staffing situation on the uni...