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Carers UK Forum - Search
<t>Hello All<br/> <br/> I am currently staying in the hospice with my husband (respite break for the two of us). Each night the staff put up a bed for me beside my husband. It is a special carer bed called a Glideaway extra high that is the same height as a hospital bed and very very comfy for a fol...
Hi Michelle

I care for my husband who has MND - so pleased you have a good support system. It is a very tough disease to cope with but I am still caring for my man who is 3 years since diagnosis. Plan well ahead and remember to enjoy each moment.
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Oh I think you should go. Something just for you. Please let us know how you get on - I have been offered a similar thing and turned it down for all the reasons you have given. If you go - I will Image
<t>Oh this is awful.<br/> <br/> The best advice I can offer is that your son immediately contacts the Citizens Advice Bureau about his finances - they are absolutely amazing and do home consultations in certain circumstances. They will be able to deal with the bank, bailiff etc and this will almost ...
<t>Carers allowance rates are an embarrassment to this country.<br/> <br/> I care for my husband 24/7 - his care is very specialist due to it being a terminal neurological disease with tracheostomy care, complete immobility, no speech etc and on ventilator. Specialist hospital/hospice with 24 hour n...
<t>Thank you all for your replies and support. Bless you all so much.<br/> <br/> My husband knows I am sad today. He has no speech so each letter is spelled out on a letter board, confused by bad spelling, tiredness and carbon dioxide build up but today he spelled "my arms are around you". So I shut...
<t>Hi Jacs<br/> <br/> I think everything you are feeling is completely normal - unless i'm not normal - and I'm pretty sure I am.<br/> <br/> Ref. home adaptions. I certainly found that once our house had been properly adapted my stress levels were reduced loads. We had a wet room built on to our din...
<t>Does your heart ever hurt, likes its gonna burst or drop through your body with the weight it is feeling.<br/> <br/> My hubby was diagnosed 3 years ago on May 22nd. We were told 6 months to 3 years - and 3 years would be way too optimistic.<br/> <br/> Today someone said "blimey 3 years - hasn't h...
<t>Hi<br/> <br/> We have pallative care via our local hospice. It is our lifeline. Our nurse not only looks after my husbands needs but mine as well. I can't say enough good things about our hospice service. Like Booksey said the focus is on quality of life. There is also a 24 hour helpline through ...