Our experiences are similar. Hampshire try to shoot the messenger rather than comply with their statutory duties. Hi BB :) It does seem to be what I hear from everyone, wherever they live. I guess I am just grasping at straws hoping that someone has come up with a magical formula to get around it a...
Hi everyone, I don't get online much these days so have seen a few names on here that I don't recognise - and a few that I do! Hello to all :) As above, really - has anyone discovered a magic formula for getting people (and by people I mean generally anyone working for a local authority) to do their...
I'm a 17 and a half year Traceaostomy carer for my daughter who is 18. She also has global development delay, cortical visual impairment and brain damage and is peg fed. The eldest daughter is 29 has severe Autism , Epilepsy and is on Anti Psychoctic medication as she is so violent. My son has come...
It's a difficult one because, for most people, if you don't care for your loved one, who will? I've a sixteen year old son with complex needs. The NHS have been dreadful at almost every step of the way, with one or two exceptions. The educational provision was so poor I ended up doing it myself for ...
She was 2 last week What gets me is that she was getting middle rate care and then all of a sudden according to dla she is the same as any other child her age I’ll get down to citizens advice tomorrow so that I can get the appeal in motion Emmy, if it's any help at all, I've been to several tribuna...
No1mum I've been googling this, and it appears, ( I may be wrong) that parental responsibility ends when a child is 18, unless they marry. So, I really think you do need to jump up and down, maybe starting with your GP, to explain its getting more difficult, with your son's complex needs, to care f...
Hello there, everybody, I hope the sun is a nice change for folk and not driving anyone mad just yet :) I just have a question and I'm hoping some of you might be able to help. I do not want to be my son's carer. He turned 16 a month ago and as far as I'm concerned, a sixteen year old without health...
Hi Mumwhocares Has anyone mentioned 'trusts' to you? It's where his money and assets is held in trust and only given to him when the trustees agree. At the end of the trust (i.e. in his death) the money goes to where specified in the trust deed, i.e. to nominated persons or perhaps a charity. Howev...
I've been reading some more and it's making me quite depressed, to be honest, it seems that basically only wealthy people with learning difficulties can have accounts in their own name or decide where any money they leave in a will can go. I'm feeling quite sick at the lack of provision; it can't be...
Hi again everyone, I thought I'd update this as I'm finding more and more things are coming up the more I read (which is always the way!) so I thought I'd start parking what I find out and my own thoughts about our situation just in case anyone has any similar experience or advice (and partly becaus...