Hi, thank you both, he's entitled to a lot of things but isn't getting them and I don't have the energy or the time for all the different battles! Transport is on my list but it's underneath EHCP, social care, tranisition to adulthood and 168 hours of unpaid care a week :) So this is my current dile...
Morning everyone, hello to those I know of old and to new people I don't know :) This might be a bit long and rambling but our situation is a real mess at the moment and I'm not sure where I ought to put my energy so I thought posting on here might shed some light from other people who've been in or...
Hi everyone, Gosh, I can relate to this. My family have made the entire situation more difficult. My sister was rather like your relatives, Jennifer, she'd turn up without notice, plonk herself down and pour out all her troubles. Eventually I told her that (a) I needed her to arrange when to come ov...
Our experiences are similar. Hampshire try to shoot the messenger rather than comply with their statutory duties. Hi BB :) It does seem to be what I hear from everyone, wherever they live. I guess I am just grasping at straws hoping that someone has come up with a magical formula to get around it a...
Hi everyone, I don't get online much these days so have seen a few names on here that I don't recognise - and a few that I do! Hello to all :) As above, really - has anyone discovered a magic formula for getting people (and by people I mean generally anyone working for a local authority) to do their...
I'm a 17 and a half year Traceaostomy carer for my daughter who is 18. She also has global development delay, cortical visual impairment and brain damage and is peg fed. The eldest daughter is 29 has severe Autism , Epilepsy and is on Anti Psychoctic medication as she is so violent. My son has come...
It's a difficult one because, for most people, if you don't care for your loved one, who will? I've a sixteen year old son with complex needs. The NHS have been dreadful at almost every step of the way, with one or two exceptions. The educational provision was so poor I ended up doing it myself for ...
She was 2 last week What gets me is that she was getting middle rate care and then all of a sudden according to dla she is the same as any other child her age I’ll get down to citizens advice tomorrow so that I can get the appeal in motion Emmy, if it's any help at all, I've been to several tribuna...
No1mum I've been googling this, and it appears, ( I may be wrong) that parental responsibility ends when a child is 18, unless they marry. So, I really think you do need to jump up and down, maybe starting with your GP, to explain its getting more difficult, with your son's complex needs, to care f...
Hello there, everybody, I hope the sun is a nice change for folk and not driving anyone mad just yet :) I just have a question and I'm hoping some of you might be able to help. I do not want to be my son's carer. He turned 16 a month ago and as far as I'm concerned, a sixteen year old without health...