Thank you everyone for the responses. I will start going through all the links provided. Just to clarify, we are not looking to claim any money, not only do I not qualify for most but we both work, i work part time from home so can rest on my bad days and my partner has a very well paid job as well....

Hello, I am new to the forum, I have recently been diagnosed with Ehlers Danlos and am looking for information. I am usually able to cope fine on my own but there are a couple of days a month when my pain gets too much and I require my partners help to get through the day. At the moment his work has...