Dear Bowlingbun, Thank you for your reply. We have a continuing health care team on standby which was arranged after a bout of pneumonia in April (in which he was given a trachy but it has since been removed) and a number of hospitalisations through summer. The problem is he doesn't want the care te...
Hi, I am caring for my husband who has MND and we have 4 children age between 2-16. I am struggling to cope with the rollercoaster of his mood swings and am feeling guilty as the children are suffering. I can manage the physical aspect of caring ( he cant use his arms, is on a NIV and PEG fed) and w...