The majority of people on this forum wont have been unfortunate enough to encounter pulmonary fibrosis, but many will be all too familiar with the confusing and conflicting emotions brought about by a diagnosis of terminal illness and I'm sure there'll be lots of support with anything you need to sh...
I'm five months on from 'the conversation' and I wish I could find words to ease your mind, but they all seem so inadequate, so I'll simply say - hang on to hope, until there is no hope. Hang on to each other like there's no tomorrow, and say the things you'll wish you'd said if tomorrow never comes...
Hi Rebecca, the road you’re travelling is a hard one. The idea of a transplant is terrifying, the implications of his not having one are equally terrifying. The fear, exhaustion, trauma of watching your OH suffer this cruel disease will colour your judgement, your reaction to things, your interactio...