Hello Liz
I also care for my husband who has congenital muscular dystrophy. He now uses a wheelchair outside the home. It is very hard watching the decline & the steadily increasing workload. Please feel free to private message me if you'd like to chat.

I just wanted to say that last year I learned to drive & passed my test at the first attempt. I was 53. I did it because my husband's disability is deteriorating & he is struggling sometimes with driving. His consultants are almost 100 miles away & the practicalities of getting there by train just d...

It is tough, Claire. I am a full time carer for my almost 60 year old husband who has congenital muscular dystrophy. His has been a slow decline and we always knew something of this nature would happen though the reality is always different from how you imagine it. It is really hard being responsibl...

I just wanted to thank you, Vicki, for mentioning this. My husband received a letter yesterday but we have had so many we only briefly glanced at it & missed the Vitamin D section. Thank you for bringing this to our attention - quite why they thought it was a good idea to hide it in the middle of a ...

There is a section on the Tax Return for taxable benefits. Carer's Allowance goes in there.

Something that people tend to forget about a motability vehicle is that it is for the person for whom the DLA is claimed - in this case your partner's son. The car can only be used by or for the person with the DLA. Consequently if the boy is spending half a week with his mother then she should have...

My husband frequently falls & cannot get up unaided & even then it is a struggle for me. We looked at our local Careline who ring the relative if the person presses their button - ie me! Consequently we never bothered as he rings me himself. Recently we have had quite a bit of input from neuro-OTs. ...

No they don't take into account the value of the house. It is based on income & savings. There should be details on the income or savings limits for your area on your council website. If you own your own home the debt becomes a charge on your house. Ours is there for 10 years. This means if we sell ...

We received significant work through a Disabled Facilities Grant - a concrete wheelchair ramp to the front door and a total bathroom conversion to a wetroom. We rung adult social care & got an OT referral stating that it was urgent - which it was. She came out within a couple of weeks and assessed t...

Once you inform the Carers Allowance people that you are going self employed they will send out various forms at regular intervals. Basically they will want to see your accounts to see that you are only making less than £116 per week. When I started I think I got a form every few months but now I ju...