I have just been told by a well funded local caring organisation to take time off work to attend the support group meetings, and other than that there is no support or help if i work , and i can not contribute if i dont attend so how can i highlight this need??
How do i feel !!!!- angry , frustrated and very unhappy....so putting it out here ...( apologies in advance!")
Support meetings/conferences or events i have attended end up discussions around money and benefits.
How do i feel to put up my hand as someone in work and say hey i need help too.....you get some strange looks and no support and in fact some 'carers' can be quite hostile.
I dont have to do masses of physical work for my caree and i can not be with them all the time due to their mental illness so its a double whammy. Mental health supporters face masses of emotional and mental stress but i suspect many of us also carry on working - its not 'like we have to dress someone or feed them' ( which I have had thrown at me during my attempts to find a support group!).
I have had to look long and hard over the years and have found a few others like me - usually they are about to give up work or are simply wearing themselves to a point where they will no longer be able to care and work and feel very much isolated.
But it is possible to work even if part time, and its not a dirty word or something that demeans others who do care 24/7 but if carer organisations keep this bias they are going to ignore the countless pepple who do work and care -its an aging population so those in work start out thinking they can manage both but with no support , its simply putting people in a position where they have to stop - surely its better to drop your hours and care then to stop completely if at all possible.
Shall we see any movement /campaiging etc on this issue ?????- will any one take this up????- lets see - so far nothing from carers uk but please feel free to correct me . Grr
How do i feel !!!!- angry , frustrated and very unhappy....so putting it out here ...( apologies in advance!")
Support meetings/conferences or events i have attended end up discussions around money and benefits.
How do i feel to put up my hand as someone in work and say hey i need help too.....you get some strange looks and no support and in fact some 'carers' can be quite hostile.
I dont have to do masses of physical work for my caree and i can not be with them all the time due to their mental illness so its a double whammy. Mental health supporters face masses of emotional and mental stress but i suspect many of us also carry on working - its not 'like we have to dress someone or feed them' ( which I have had thrown at me during my attempts to find a support group!).
I have had to look long and hard over the years and have found a few others like me - usually they are about to give up work or are simply wearing themselves to a point where they will no longer be able to care and work and feel very much isolated.
But it is possible to work even if part time, and its not a dirty word or something that demeans others who do care 24/7 but if carer organisations keep this bias they are going to ignore the countless pepple who do work and care -its an aging population so those in work start out thinking they can manage both but with no support , its simply putting people in a position where they have to stop - surely its better to drop your hours and care then to stop completely if at all possible.
Shall we see any movement /campaiging etc on this issue ?????- will any one take this up????- lets see - so far nothing from carers uk but please feel free to correct me . Grr