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Carers UK Forum • How much
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How much

Posted: Wed Nov 23, 2011 9:25 pm
by MaryB
I just realised that I live very close to a residential home for adults with autism and SLD, knew it was there but always thought it was an old peoples home as it was so quiet.
Anyway apparently they charge between £500 and £1000 per week!!!
This is an extraordinary amount imo, all residents are funded by our LA, makes a mockery of my £55 CA for 2 autistic teens, still I would do everything possible not to send them to this expensive place, not least because on their inspection it was found that medication was being given which is out of date and other meds that should be refrigerated was not but still it was rated as good! Wonder what has to happen to be bad? Editing to say this is probably the wrong place for this thread, sorry.
Vicky

Re: How much

Posted: Wed Nov 23, 2011 10:21 pm
by ladybird
The place my daughter went to in August was nearly twice as much.

The place she is in now is nearly half as much again.

To my knowledge, residential placements are often in these types of price brackets and those that are "specialist" would obviously be more expensive.
It is easy to forget that for those that need access to a wide range of services, the cost of keeping someone in a supported living placement or something similar can be just as costly if not more so.

It really depends very much on the individual circumstances.

Re: How much

Posted: Wed Nov 23, 2011 10:33 pm
by MaryB
Not specialist enough for my liking with out of date meds wrongly stored. I'm not familiar with inspection reports but suffice to say I wont be knocking on their door any time soon.
Vicky

Re: How much

Posted: Thu Nov 24, 2011 4:37 am
by charles47
Hi Vicky - I totally agree about the £55 being a mockery.

When we were looking to sort out Mike's living arrangements we compared the cost of his placement with the cost of local specialist residential placements - for Mike, they were talking around the £3,000 a week mark, which is not uncommon for specialist autism placements. For that I'd expect something rather better than out of date and improperly stored medication!

Re: How much

Posted: Thu Nov 24, 2011 10:44 am
by Eun
Yet they are talking about putting my physically disabled son into an old persons home if we don't provide the care! If there are all these specialist places for people with autism where are the specialist places for those with physical disabilities? Or are we just expected to carry on caring (who would put their 26 year old into an old folks home) until we drop down dead?

Eun

Re: How much

Posted: Thu Nov 24, 2011 1:03 pm
by ladybird
Yet they are talking about putting my physically disabled son into an old persons home if we don't provide the care! If there are all these specialist places for people with autism where are the specialist places for those with physical disabilities? Or are we just expected to carry on caring (who would put their 26 year old into an old folks home) until we drop down dead?

Eun
I don't know the details about residential places specialising in Autism, my daughter went to a placement for people with Prader-Willi syndrome (even though it is now suspected she has autism as well).

I had a look on the internet and totally see what you are talking about Eun, it really is an appalling situation for young people who may need specialised care for their physical disabilities-I wouldn't want my young person to go into an older persons home either.
Some of the places I looked at say they deal with young people which they class as 18-65 yrs..maybe I'm missing something here but that very much sounds like a total cop-out!

The only thing that looked remotely suitable for a young person was on the BUPA website. I know very little about the ins and outs but note that they accept patients who need NHS continuing care and they also take local authority patients. Of course nursing care is added to the cost of the mix but it seems similar to what would be paid elsewhere.

I guess you have probably looked into all options Eun but thought I would raise this one, just in case.

Re: How much

Posted: Thu Nov 24, 2011 2:05 pm
by charles47
I don't disagree with you, Eun, but the physical disability movement has always railed against residential care in favour of living in the community, while the first step for people with autism was to get them out of the mental hospitals.

Re: How much

Posted: Thu Nov 24, 2011 4:44 pm
by Eun
Charles if it is the case regarding physically disabled people living in the community why are our SW department not willing to fund that but they are willing to fund those with learning disabilities to do the same thing - how is that fair? It is basically down to saving money and thats all it is.

If the movement has been so successful at getting physically disabled people the support they need to live in the community why are many of Roberts friends already living in Old peoples homes because their parents are just done in and can't cope any more. Why are we being threatened with this instead of Robert being given the support he needs?

Its been the same way in this area for his entire life - all the support went to people with learning disabilities (playschemes, out of school clubs etc) and the presumption was that physically disabled kids could just fit in with the mainstream. A lot of the mainstream places weren't accessible.

Even when Robert was in a Scout troup which was supposed to be for physically disabled kids my husband and I had to lift son and wheelchair up a number of stairs to get in to the building (as did the other parents with their physically disabled kids).

As he grew up he wasn't welcome in the groups for kids with learning disabilities - he tried it but all the kids with Downs syndrome kept hauling him out of his wheelchair so they could have a shot and it got to the stage where he was terrified to go back there again. He wasn't welcome in the mainstream groups either as the able bodied kids just ignored him or bullied him.

Eun

Re: How much

Posted: Thu Nov 24, 2011 4:52 pm
by charles47
Eun, I can only speak generally, or about my own area - I can't speak for your area as I don't know it.

I agree that it's unfair from what you're saying about your own area but frankly if that is what the local council is doing there's a better than even chance they are breaking the law and that someone with the necessary knowledge could challenge them.

Re: How much

Posted: Thu Nov 24, 2011 5:14 pm
by ladybird
Looks like my post wasn't any use..well, worth a try I suppose.

Without wishing to get too off topic from the original post, there will always be other circumstances to be taken into account with disabilities of all kinds.

My daughter was excluded from practically all activities provided by our borough because she has mild learning difficulties not severe, same with her physical problems. It is the general consensus of opinion in this borough that she should be in some kind of education programme or voluntary work, as this was tried and failed on many occasions she just sat at home all day long as nothing else was suitable..her disability wasn't severe enough apparently. Discriminatory? Certainly was but the answer was the money pot is only so big.

Anoher thing to remember is that many kids with learning disabilities have physical disabilities and vice-versa, they are not necessarily seperate conditions. There are not that many options open to them either.