Please complete the 2018 State of Caring Survey

Discuss news stories and political issues that affect carers.
Thanks very much to everyone who has completed the 2018 State of Caring Survey in the past couple of weeks. If you haven't yet undertaken the survey, it would be really helpful if you could do so in the next week or two.

Each year Carers UK runs the State of Caring Survey to help us show the reality of what it means to care for a family member or friend. We need your help to give us the evidence to support our campaigns and give us a real-time picture of what it’s like to be a carer in 2018.

This is the most extensive survey into carers' experiences in the UK. As a result, it will take at least 20 - 30 minutes to complete. We really appreciate the time that every person takes to complete the survey and give us a full picture of their caring experience. We will publish the survey results later in the year.

To go to the survey please click on this link:
https://www.surveymonkey.co.uk/r/SVSCD8G

Campaigning for change

Last year more than 7000 carers shared their experience by completing the State of Caring Survey. We used this to provide evidence on a whole range of issues and to make the arguments to Government, to policy makers and to MPs about what carers need. It meant the voices of carers were heard in debates about NHS funding, the quality and funding of care services, loneliness, human rights, pensions and many more issues.

This year we are campaigning for carers to be able to access a break from their caring role, for a rise in Carer’s Allowance and for stronger rights for carers who are juggling work and care.

We know too that social care and the NHS will again be at the top of the agenda this year. We want to make sure that pressure on carers is at the centre of discussions about more funding and your evidence will be really helpful in enabling us to do this.
Thanks Michael ... regular readers will know of it's launch prior to it's appearance on the front page of the Carers Uk web site ... and this thread ... first publicized on the CUK FaceAche page on 10 April ( ? ) ... as we continued the old 2017 one as opposed to starting one for 2018 ourselves.

https://www.carersuk.org/forum/news-and ... ing%202017

Will the Carers UK submission for the forthcoming " Carers Strategy " be tightened up ... specific as opposed to general / targeted as opposed to the scatter gun ... when the results for 2018 are known ?

https://www.carersuk.org/forum/news-and ... 2008-28906


Assuming that some of last year's questions and areas ( Eg. housing ... problems escalating almost out of control ) have been modified to reflect our concerns from last year ?

Or , a case of " Let sleeping dogs lie " ?

Just for curiosity sake.
It's the last week to fill in our State of Caring Survey. Help us tell your stories and make the case for the change carers need to see. We're really grateful to everyone who takes the time to complete it.

To go to the survey please click on this link:
https://www.surveymonkey.co.uk/r/SVSCD8G

Thanks very much

Michael
Help us tell your stories and make the case for the change carers need to see.


For the twentieth year running ... as if the needle is stuck in the groove ?

If ever on paper , many boxes will be obliterated due to same tick being applied ... especially in the finances and supporting services sections.

Prefer the short form , our Lord Kitch ... he lists all in one place.

Merely an observation as nothing has really changed in past 20 years ... even the Care Act , 2014 sparkled ... for a brief time before fizzling out without ascending an inch.

If anything , caring has become harder than ever , with fewer tools at our disposal.

Any idiot can see that even slaves need resources to survive !!!
I will assume that the following report ... in .pdf format ... is the end " Result " of the 2018 survey ?

https://www.carersweek.org/images/Resou ... Report.pdf

My immediate reaction ?

That can wait ... I know what I need to see from the perspective of the " 1 in 4 " ... close / at / below
the official poverty line ... food bank usuage / energy / inadequate housing ( Time on a waiting list ? ) / support services /
lack of public transport / finances / malnutrition in family carers etc. etc.

What's yours reaction ?

Same view of CarerLand that YOU see ?


Supporting Carers to be Healthy and Connected.



1. Adequate finances ( No more eat or heat ) ... 2. affordable / free support ... next question ?

In essence a snapshot of a tiny piece of CarerLand ... desirable when compared with my " Piece. "

Was there a " State income ... if in a family , total income coming ? " ... type question ?

That would have had a impact come sorting out what the survey showed ???

Results from 1 in 1,000 family carers ... those with internet access ... no hard copies were circulated
to my knowledge ... therein is one bias ... anymore ?

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Mentioned often in the 2017 build up ... need to get responses fromthe 1 in 4.

Purely taking the accepted figure of 6.5 million family carers , and using the same sampling technique as Carers UK ,
that means 1.625 million family carers are members of the infamous 1 in 4 club.

FOOD BANKS ... at least one question asked ... no trace in the report ... a minimum of 100,000 of our fellow carers used one in the last callender year ... WHAT IS GOING ON ???[

Inference is no problems with family carers using food banks !

No one high up spot that BEFORE the report was published ???

The only figure quoted , either in the report or this posting , which is based on " Actuals " is the figure for food bank usuage !

############################################################################

Green Paper next ... carers of 2018 and beyond ?

You have my sympathy ... for what that's worth.

1 in 4 ?

Perhaps 2 in 7 by the end of 2019 ... including a few readers now reading this post.

At least they have a " Voice " of sorts ... mine.
Hello Chris - the report you've provided the link for was just produced for Carers Week. A more detailed State of Caring report will be communicated widely in the second week of July.

Hope this helps

Michael
Thanks Michael ... wrong deduction , my APOLOGIES.

Should have realised that when skimming through !
Hi Chris

just received an email from Emily Holzhausen at Carers UK - the report has now published here:

https://www.carersuk.org/images/Downloa ... KM,MDWL9,1
Thanks Susie.

A tasty morsel for a hungry lion ?
Nothing in there to frighten the horses or anything not gleamed already.

In CarerLand , we see all there is to see on a daily basis.

In essence , ALL bar a couple of paragraphs could have been extracted from numerous threads.

All that time and energy spent ... JUST READ THE FORUM !

You'll learn more about caring in an hour than a whole week in those ivory towers of yours !

A few of us provide a service to fellow carers that NO supporting organisation comes close to matching.

No pay / pensions / committees / liasing / lobbying / pending files / leave it for someone else ... see a problem , we do our best to solve it.

As carers , we KNOW CarerLand ... that makes all the difference in the world.

Only major concern is the lack of input from the 1 in 3 ... family carers demned to be close / at / below the official poverty line ... from the Report ...even my estimate was too low.

I said the same in the build up to last year's Report ... and in advance of next year's Report.

Even if , say , 2,000 of these had completed a written survey ... Internet access hardly likely ... more emphasis would have been on the finances and supporting services element ... bleak as both are even from those sampled !

Foodbanks and housing ... 2 very MAJOR issues ... Report remains silent.

Two carers with their carees now residing in one of the local tent cities ... probably more in other manors ?

Any reason beyond that infamous Gagging Order ?

Having backed " That plan " ... what are your proposals for assisting all those who CANNOT balance work with caring ???

Report silent on that one ... no proposals ?

CA to the level of ESA ?

Fine ... good for 1 in 12 who can claim CA ?

Nothing about the barriers to claiming CA ... or for those who cannot claim it.

Nor on the biggest boost to carer finances available .... two huge birds with one stone ... A CARERS CARD ... free travel with caree on public transport ( Albeit those in receipt of a twirly card will see no benefit ) and ... blowing the dust off ... identifying carers ... after ... 40 odd years ???

Still ... survival goes on in CarerLand ,,, Report or no Report.

Won't help any facing THAT choice ... to eat or to heat ... or pay the rent ???

Perhaps we can discount the heat element ... for now ?

Still leaves the rent !

Call us again when next year's annual Report comes up on your diary.

Most readers have caring tasks to perform in the interim.