Mention "carer" and most people think you are talking about an elderly parent.
At Carers meetings I used to go to, I was usually the only one caring for my child, a complete fish out of water.
I recognised early on that my family had been given a life sentence, and was determined that I would do my utmost to ensure we all had the best life possible.
This week, almost 3 years late, I've received the Subject Access Request results. 1800 sides of paper, yet STILL I am banging on about the same things I was three years ago, just the same old same old to yet another social worker and yet another care provider.
Does no one care that the bicycles are never serviced now, that one bike that was condemned was "mended" by my son from a similar bike put out for the dustmen to collect??
Does no one care that my son has put on almost a stone during lockdown? He's now 19 stone, he should be nearer 14.
His old care plan said he should do an hour of exercise every night, does no one care that he never does any meaningful exercise?
Does no one care if the most exciting thing he does is go to the tip?
I'm so, so weary of fighting to get what he should be getting anyhow.