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Carers UK Forum • Campaign - support lifetime care disabled
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Campaign - support lifetime care disabled

Posted: Mon Apr 02, 2012 9:04 am
by Penny
http://www.dailymail.co.uk/news/article ... eople.html

In a hurry this morning - but thought this was really worth a mention on here.

Re: Campaign - support lifetime care disabled

Posted: Mon Apr 02, 2012 12:07 pm
by Lazydaisy
Thanks for this Penny.I have shared it on Facebook too. I haven't been able to sign it yet, it won't accept my email, but will keep trying.

Re: Campaign - support lifetime care disabled

Posted: Mon Apr 02, 2012 1:38 pm
by pamr
thank you penny, very good campaign to support in my opinion, and good to have a high profile mother involved.

my names on and i will try and get others to support as well. x

Re: Campaign - support lifetime care disabled

Posted: Mon Apr 02, 2012 7:55 pm
by michael parker
Yeh,great cause.Managed to sign up okay but took 3 attempts.Ho hum. Image Image Image

Re: Campaign - support lifetime care disabled

Posted: Mon Apr 02, 2012 9:53 pm
by Penny
Thank you everybody.

Re: Campaign - support lifetime care disabled

Posted: Mon Apr 02, 2012 10:11 pm
by bowlingbun
I've signed too. My son has severe learning difficulties, this is such an important issue for parents like me.

Re: Campaign - support lifetime care disabled

Posted: Tue Apr 03, 2012 1:22 pm
by Eun
It should be supporting lifetime care for all disabled people not just those with learning disabilities. What happens to my severely physically disabled son if something happens to his dad and I? There are places for people with learning disabilities to live independently - where is such a place for my son - I'll tell you where - nowhere!

Eun

Re: Campaign - support lifetime care disabled

Posted: Tue Apr 03, 2012 1:34 pm
by bowlingbun
Eun,
I agree 150%. I think this was for learning difficulties because the single child that prompted the campaign has LD, but it applies equally to everyone with any disability. I get really annoyed when I see the council tarting up areas when there are so many cuts. My sister in law lived in a normal suburban street with grass verges either side. Now it's been improved with large planters forming a chicane, and halving the parking in the street in the process. Community care is far more important to society as a whole.

Re: Campaign - support lifetime care disabled

Posted: Tue Apr 03, 2012 1:55 pm
by ladybird
It should be supporting lifetime care for all disabled people not just those with learning disabilities. What happens to my severely physically disabled son if something happens to his dad and I? There are places for people with learning disabilities to live independently - where is such a place for my son - I'll tell you where - nowhere!

Eun
Totally agree with you Eun, it is an issue that I feel very strongly about.

To be blunt, I feel that it is to do with life expectancy, the powers that be expect the parents to outlive the child and so what we would consider lifetime care isn't necessary. In my humble opinion it is discrimination of the worst kind and if I were in your position I would feel angry and cheated.

It appears that the vast majority of these campaigns for change are started by parents or organisations that represent the disabled and/or their families. Have the DMD organisation done anything like it or would you consider putting something together yourself?

Obviously time is an issue as it is for us all but you have the expertise and so does your son..I would happily sign anything that you could come up with asking for equality of care.

And I'm sure I wouldn't be the only one.

Re: Campaign - support lifetime care disabled

Posted: Tue Apr 03, 2012 2:49 pm
by Penny
It's a start though Eun.

I would also sign a campaign on behalf of you and your son. Anybody can start an E-petition. Image