It should be supporting lifetime care for all disabled people not just those with learning disabilities. What happens to my severely physically disabled son if something happens to his dad and I? There are places for people with learning disabilities to live independently - where is such a place for my son - I'll tell you where - nowhere!
Eun
Totally agree with you Eun, it is an issue that I feel very strongly about.
To be blunt, I feel that it is to do with life expectancy, the powers that be expect the parents to outlive the child and so what we would consider lifetime care isn't necessary. In my humble opinion it is discrimination of the worst kind and if I were in your position I would feel angry and cheated.
It appears that the vast majority of these campaigns for change are started by parents or organisations that represent the disabled and/or their families. Have the DMD organisation done anything like it or would you consider putting something together yourself?
Obviously time is an issue as it is for us all but you have the expertise and so does your son..I would happily sign anything that you could come up with asking for equality of care.
And I'm sure I wouldn't be the only one.
