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Campaign - support lifetime care disabled - Carers UK Forum

Campaign - support lifetime care disabled

Discuss news stories and political issues that affect carers.
http://www.dailymail.co.uk/news/article ... eople.html

In a hurry this morning - but thought this was really worth a mention on here.
Thanks for this Penny.I have shared it on Facebook too. I haven't been able to sign it yet, it won't accept my email, but will keep trying.
thank you penny, very good campaign to support in my opinion, and good to have a high profile mother involved.

my names on and i will try and get others to support as well. x
Yeh,great cause.Managed to sign up okay but took 3 attempts.Ho hum. Image Image Image
Thank you everybody.
I've signed too. My son has severe learning difficulties, this is such an important issue for parents like me.
It should be supporting lifetime care for all disabled people not just those with learning disabilities. What happens to my severely physically disabled son if something happens to his dad and I? There are places for people with learning disabilities to live independently - where is such a place for my son - I'll tell you where - nowhere!

Eun
Eun,
I agree 150%. I think this was for learning difficulties because the single child that prompted the campaign has LD, but it applies equally to everyone with any disability. I get really annoyed when I see the council tarting up areas when there are so many cuts. My sister in law lived in a normal suburban street with grass verges either side. Now it's been improved with large planters forming a chicane, and halving the parking in the street in the process. Community care is far more important to society as a whole.
It should be supporting lifetime care for all disabled people not just those with learning disabilities. What happens to my severely physically disabled son if something happens to his dad and I? There are places for people with learning disabilities to live independently - where is such a place for my son - I'll tell you where - nowhere!

Eun
Totally agree with you Eun, it is an issue that I feel very strongly about.

To be blunt, I feel that it is to do with life expectancy, the powers that be expect the parents to outlive the child and so what we would consider lifetime care isn't necessary. In my humble opinion it is discrimination of the worst kind and if I were in your position I would feel angry and cheated.

It appears that the vast majority of these campaigns for change are started by parents or organisations that represent the disabled and/or their families. Have the DMD organisation done anything like it or would you consider putting something together yourself?

Obviously time is an issue as it is for us all but you have the expertise and so does your son..I would happily sign anything that you could come up with asking for equality of care.

And I'm sure I wouldn't be the only one.
It's a start though Eun.

I would also sign a campaign on behalf of you and your son. Anybody can start an E-petition. Image