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Guest Visitors : Q & A Session ? CUK Deliberating Since ... 6 July 2018. - Page 5 - Carers UK Forum

Guest Visitors : Q & A Session ? CUK Deliberating Since ... 6 July 2018.

Share your petitions or campaigns here.
IF SOMEONE FROM CUK IS MONITORING THE POSTS ON THIS FORUM , 3 ISSUES , DIRECTLY RELATED TO DAY-TO-DAY CARING , ARE STANDING OUT LIKE LIGHTHOUSES
... AND THEY ARE INTERLOCKED.

( MANY OF THE HIERARCHY DO SO MONITOR ... WITHOUT SIGNING IN ! AS THEY WILL KNOW ONLY TOO WELL , SURVIVAL AT STREET LEVEL IN CARERLAND
IS A LOT DIFFERENT TO THE WORLD THEY SEE FROM WITHIN CUK ?)


1. UNSAFE HOSPITAL DISCHARGES

2. CHC / NHS CONTINUING HEALTHCARE

3. GREEN PAPER , SOCIAL CARE

ALL 3 CAN BE ROLLED INTO ONE GUEST SPEAKER :

THE NAME OF PROFESSOR LUKE CLEMENTS TOPS THAT LIST.

http://www.lukeclements.co.uk/

( Luke Clements is the Cerebra Professor of Law at Leeds University and is a solicitor. )

ANY CHANCE YOU CAN PRESS GANG HIM FOR 2 / 3 SESSIONS ON THE ABOVE ?

COME MARCH 2020 , THE SECOND ANNIVERSARY SINCE WE FIRST ASKED FOR " PERMISSION " FOR GUEST SPEAKERS TO APPEAR ON " OUR " FORUM.
I second Chris's suggestion that we ask Luke Clements to be a guest visitor.
If " We " succeed , essential for Prof. LC to peruse the relevant threads in advance of any session.

They contain all there is to know , so far , of the problems facing ALL family / kinship carers FROM OUR PERSPECTIVE ... the very bottom of the food chain.

Be interesting to see how a leading academic transforms himself into one of us in order to see the very crux of the problems ?

Might even have to rewrite some of his leading publications ... standard bibles in the world of social care ?

( MAIN CHC thread ... his video ... a prime example ! )

Even a new one ... Family / Kinship carers : The doormats for the NHS and LAs ... that has a certain ring about it ?

( His students ... any carers and that 21 Hour Rule experience ? )


On second thoughts , pack an overnight bag , Luke ?
Perhaps one reason why CUK are somewhat hesitant about inviting guest speakers onto the forum ... to talk directly with us ?


Army of carers must get 'militant wing' to win rights, expert says.

Carers must 'get angry and militant' to demand better rights, one legal expert has said.




Britain's army of voluntary carers should get "militant" in the fight to be properly recognised, a legal expert and former government care advisor has said.

Professor Luke Clements, from Cardiff University, said carers must demand political change, with legions of unpaid family members feeling the strain of looking after their loved ones.

Speaking at Hay Festival, he argued it was time for carers to become militant in their fight for fairness and funding, ensuring politicians have post bags full of letters pressuring them to help.

Saying they may need the modern-day equivalent of the suffragettes, Prof Clements, who has advised the government on care policy , said Britain must change its attitude towards denigrating dependent people and condemning their cost to society.

"What we need to do is to be angry," said Prof Clements, director of Cardiff University's Centre for Health and Social Care Law. "We need to demand political change.

"We need to have resources. What we need to do is enormous policy change.

"I try to encourage all the groups I go to to develop a militant wing and encourage them to nominate somebody to throw themselves under the Queen's horse, basically.

"Because I think carers have got to become militant.

"The law does give people very good advice but collectively you cant really change the situation without politicians postbags being full of this stuff."

He added concerns about an ageing population were too often framed as "those dreadful old people", with people being told to fear the rising costs of care.

The new Care Act, he added, was an "honourable end" and "generally a good piece of legislation", but is severely hampered by a lack of funding.



Someone who will tell us not to roll over and just accept our fate ???
Hi Chris and bowlingbun

Thanks for your suggestions for guest visitors who could run a Q&A session on the Forum this year. As we did last year, we will be conducting some more Q&A sessions on the Forum during 2020, including from guest visitors.

I'll pass on your suggestion for inviting Professor Luke Clements to conduct a Q&A session to our policy and public affairs colleagues and let you know what they say.

Michael
Michael, how about them considering a fighting fund of some description for those with the most difficult cases. Continuing Healthcare comes to mind as one area where the law is being continually flouted. Even apparently simple things like Needs Assessments aren't being done properly.
Thanks Michael.

It's taken us 22 months to get to this point.

Readers really appreciate that !

Regarding Prof. Luke , one session is never going to be enough.

Perhaps one of his students could take on bits ???

Even better , join us on the forum ... we can use some additional expertise ... at times.
Michael, how about them considering a fighting fund of some description for those with the most difficult cases. Continuing Healthcare comes to mind as one area where the law is being continually flouted. Even apparently simple things like Needs Assessments aren't being done properly.


Not forgetting that Should / Could / Would Act of 2014.

Widespread abuses of that daily by LAs ... many instances documented on the forum.

Doe anyone other than ourselves care anymore ?
I would like to add that the whole ehc process needs sorting out.

Someone who can answer questions on this farcical system would be good.

Families having to take LA's to tribunals constantly. LA's spending thousands on barristers and solicitors on fighting the parents and 92% of the time the LA loses.

What a waste of public money that could have been spent on the children.

There are articles where parents have even committed suicide due to fighting for an education that is rightfully their childs.

Parents are suffering from stress, anxiety and depression having to fight the council.

Parents are having to spend hundreds if not thousands of pounds on assessments for their children as often LA's are not doing them.

A lot of parents give up as the stress of fighting is too much. Those children are left without the education and therapies that would have helped them reach their potential.

Total disgrace.

I am all for being militant. If you are too nice you are a pushover and they just walk all over you.
An academic nominee for EHC , CloudyGal.

One who may not toe the official line ?

Who inspires you in that specialist field ?

Perhaps a disability rights campaigner ... with a special emphasis on EHC ?