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signatures needed for L/D and Early age Dementia. Please!!!! - Page 4 - Carers UK Forum

signatures needed for L/D and Early age Dementia. Please!!!!

Share your petitions or campaigns here.
Signed & good luck
288 with just a day to go - are there any more who'd like to sign and take this to 300?
Response here

The Government has acknowledged the need to reform care and support services to meet the challenges posed by a society in which people live longer and fuller lives, and, quite rightly, expect more from care services. In May 2008, the Prime Minister launched a six-month long public engagement to ask the public and stakeholders for their views about the future of care and support. The views received will help to inform a Green Paper which will be published this year. Further details are available online at www.careandsupport.direct.gov.uk.
Have read the response a number of times,but cant see anything positive in the answers that will help me 'now' '. Sounds as if I should see some practical improvement over the next three years? Am not happy at all about the latest suggestion from our SS service suggesting my daughter goes to ANOTHER day centre twice the size of the one I had to take her away from!! Farther away too and also is known to be very noisy and only partitioned walls!! It used to be open plan. Totally unsuitable for a young person with L/D and dementia or any older person too!!
They have offered a one to one which i have been requesting for over a number of years. This person would be a support my daughter in a day base setting. If they only listened and used some common sense then this shocking situation wouldnt excist!! I see the cause as Social Care and Health not working together, and their rules are set in concrete with no flexability.
I would be very grateful if someone more knowledgable than me reads the response and gives me their opinion!! Perhaps I have missed something very important?
If I have read the reply correctly it addresses the future strategy for people with learning disabilities:
The strategy’s aim was that people with learning disabilities should lead their lives like any other person, with the same opportunities and responsibilities, and be treated with the same dignity and respect. They, their families and their carers are entitled to the same aspirations and life chances as anyone else. This means inclusion, particularly for those who are most often excluded, empowering those who receive services to make decisions and shape their own lives, and support for people with learning disabilities to have a full life, for example through work, education, housing and social activities.
It talks about the government's dementia strategy]The petition also raises concerns about early onset dementia. On 3 February, Alan Johnson, Secretary of State for Health, announced the publication of Living well with dementia: a National Dementia Strategy. The publication follows a consultation which drew on evidence from a wide range of reports and stakeholders, a series of listening events involving over 3,000 people and the recommendations of an external reference group.

The strategy is backed by £150million over the first two years. It will increase awareness of dementia, ensure early diagnosis and intervention and radically improve the quality of care that people with the condition receive. The full strategy is available on the Department of Health website by typing ‘National Dementia Strategy’ into the search bar.

A key part of the strategy will be the establishment of memory services throughout the country, staffed by specialists. These will help identify and diagnose dementia much earlier than is the case now. Their focus will be on early diagnosis and intervention for people with dementia and services will include:

· rapid and competent specialist assessment;
· sensitively communicating the diagnosis to the person with dementia and their carers and family; and
· providing directly appropriate treatment, information, care and support after diagnosis.

The strategy also calls for more training to be made available for all staff providing care for people with dementia. Currently only around a third of people with dementia receive a formal diagnosis and that has to improve in order to provide the care and support that these people and their families need. The Department wants to see GPs trained to recognise the early symptoms of dementia and be able to refer people with dementia on to specialist services. Receiving an early diagnosis will enable people with dementia to have a better quality of life and plan for their later years. They will also be able to stay longer in their own homes. This is something which is very important to people with dementia, their families and carers, and the Department will be working closely with all the training bodies to make sure this happens. [/quote]

But it appears to completely fail to address the subject of the petition, i.e. specialist services for the growing number of individuals with LD and early-onset dementia for whom neither of the strategies referred to are appropriate.
Thank you for your response Parsival. I thought that too, but thought I was missing something significant!! I havnt a clue who to contact or what to do now, but will send the response to my MP who hopefully will follow it up.
Any other ideas will be gratefully recieved!!

Downs dementia risk overlooked

Not enough is being done to support the growing number of people with Down's syndrome who have dementia, say campaigners.

As many as 50% of all people with Down's in their 50s may now have Alzheimer's disease, as they often get the condition much earlier than others.

But critics say the issue was barely mentioned in a recent green paper on dementia care in England.

Jane ( Lazydaisy ) came across this and thought would interest you.
Researchers at the University of British Columbia and Vancouver Coastal Health Research Institute have discovered that the genetic mechanism which destroys brain cells is responsible for early development of Alzheimer's Disease in people with Down Syndrome and for development of Alzheimer's Disease in general population – providing a potential new target for drugs that could forestall dementia in people with either condition.

see here