Thank you to everyone who filled out my survey about online support for parents of people with Rett syndrome. I am now looking to interview UK parents of people with Rett syndrome about experiences of visiting online sites and groups (like this one) where carers can share messages. This will also involve filling out a few short, confidential records about what you have read or posted on relevant sites or email groups recently (if anything)

All information from this research will be kept securely in accordance with the Data Protection Act (1998) at all times and reports will not identify anyone by name.

If you are interested please contact me for further information. You can reach me on or 07583 641437.

You are free to change your mind when contacted if you no longer wish to take part in this research.

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