Hello - just a quick reminder that my (PhD) survey about online support for UK parents of people with Rett syndrome is running for another week and a bit. This will help to increase understanding of if, when and how online sites and groups that allow carers to post messages to each other are useful to parents. It takes between 10-15 minutes to complete. Thank you.

https://www.surveymonkey.com/s/RettSyndrome